Most Recent Messages

Hang in there.

For all of you that are having problems with your pacemakers, hang in there. Pacemakers should not be giving you problems. They are there to help your heart, not make it worse, not hurt and not make you feel like you're choking.
I have now had a pacer for 32 years. Problems? Sure, but persistance at getting them solved and an understanding cardiologist have helped. I just recently switched from a cardiothoracic surgeon (he just grew too old to operate - 84 years old!!) to a very fin...

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Sore Shoulder

Hi Pacers

It is winter again, very cold and I have developed my painful left shoulder again. I get a pins and needles feeling down the shoulder blade at times. My Doc says it is osteo arthritis and had it xrayed. I get the results on Monday. I have had this pain on and off since my pm was put in on my left side below collar bone. Anyone else suffer the same prob and how do you cope. It is so painful and affects driving. Keep well folks.

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Kidney disease & a pacemaker

I have polycystic kidney disease and have had a pacemaker implanted for a few years now. It has totally changed my life for the better! Does anyone have a combination of kidney disease and a pacemaker. I am only 42, but I will need a kidney transplant in a few years and I wanted to know if the pacemaker would interfere?

Thanks,

Donna

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New Treatment of Atrial Fibrillation

We frequently have people asking questions or telling us about about having treatment for artial fibrillation. I thought the following article from the Temple Daily Telegram on 7-16-07 might be interesting to some.

SCOTT & WHITE USES NEW HEART DEVICE

Scott and White surgeons in Temple, TX, Monday were the first to use a new device they helped develop for the treatment of atrial fibrillation. Atrial fibrillation is the most common form of heart arrhythmia, affecting more t...

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Moving pacemaker

I had a pacemaker implanted May 24 th this year 2007 , since the first week It turns up when I lay on my right side.I have to push it back in place. The doctor said it would probably be O.K. It stays some what sore. has anyone had this problem?

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4 loose

My father has had his lead come loose 4 times in 6 years. He is 89 and the doctor this time is going to put a stint into the arterrt and screw into that. Has anyone had this problem before and what have they done?

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ANY IRISH PACEMAKER RECIPIENTS

Hello again,
I posted a message last week but thought I'd do it again just in case .. .. .. ..

Just wondering whether any Irish Pacers would be interested in getting together. Please let me know if anyone is interested, there's 3 of us so far (from Dalkey, Donegal and Galway) but there must be more of you out there ........... drop me a line with any thoughts, thanks and look forward to hearing from you ......

Best regards,
Anita.


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Now Need Aortic Vavle Replacement

It had been four months since my PM implant and I had been experiencing chest pains. Had a heart cath done a couple weeks ago to determine the cause. I was told by my cardiologist that my aortic valve (which is bicuspid and should be tricuspid) now needs to be replaced. I am seeking an opinion from the Cleveland Clinic regarding the pending surgery....If all goes well expect to have the valve replaced the end of July or first of August at CCF with surgery done by Dr.Lars Swensson......

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name stuck

hi blake i am stuck on this site my name has been there for 24 hours and i am not on jessie

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Can't Log Out

For some reason I can't log out of the system.Can anyone help me? I've never had this problem before. What am I doing wrong? It bothers me to see my name all the time. Please make me go away.LOL .saragunther

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A 2½ pounds pacemaker?!!!

Hi Gellia.

I couldn't help but be shocked at the comment you made regarding your 1st pacemaker, implanted 32 years ago.
It weighed 2½ pounds? Would you mind elaborating? I'm very curious about how it felt, where it was placed, was part of it outside your body? etc.
Mine is a bit larger than the norm, but at about 3" long, and ounces in weight, the next time I have a complaint about how it feels, I'll remember how you must have felt, and feel fortunate about the advances made...

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relocation

  • by njh
  • 2007-07-18 07:07:23
  • ICDs
  • 2789 views
  • 2 comments

Hi everyone,

Just joined the club. Received my ICD in March, 2007. I'm not happy with it implanted subcutaneously. Hurts. Itches. Gets in the way. In Aug. I talk to the surgeon about the possibility of having it relocated under the pectoral muscle. Have done lots of reading about the pros and cons of the relocation. I've read a few postings from people who are happy with the ICD under the pectoral muscle. I'd really appreciate your feedback. Once the ICD is relocated, I know that the...

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Sore throat

Hi all, four weeks since I had my op, not feeling bad on the whole except a feeling of tightness in my throat whenever I try to breath deeply or attempt any excersise. Did a little swimming this morning and that really set my throat off, quite painfull for 15 mins or so. Any advise on what may be the cause of it, I seem to remember reading other posts about the same problem.

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Nearly Out of the Woods

My father who is 72 has had a pacemaker fitted on 13 June. He is doing well and has gone back to work, takes my mother shopping and is trying to live an active life. Unfortunately without warning he keeps experiencing going hot and slumping down this only last for a few minutes. When this happens his head goes forward and the colour goes out of his face.

Please could anyone let me know if they have experience this.

Thank you Debbie

Wishing everyone good health

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All caps.....

Hi Everyone - Could everyone please not use all caps when posting messages? It is probably my years creeping up on me but I find it more difficult to read a message in caps as opposed to upper and lower case. Even my new glasses did not help! Oh, what the years can do to us. Thanks, friends.
Sharon

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My Aunt

My aunt, who did develop an infection after a PM implant, and who was 99 yrs. of age, did pass away at 1:30 am yesterday morning. Thank you for your concerns and prayers. I will not be able to attend the service as she lived in Minnesota.

Again, thanks to all

Sharon

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PLEASE HELP

HELLO IA M 28 YEARS OLD AND HAVE IST. I HAVE HAD 5 SA NODE ABLATIONS AND 1 AV NODE ABLATION. MY PACEMAKER WAS IMPLANTED IN 2004. I CONTINUE HAVING IST EVEN THOUGH I AM ON THE MAX OF MEDS I CAN BE ON. MY CARDIOLOGIST WANTS TO HAVE MY COMPLETE ELECTRICAL SYSTEM ABLATED AND BE PACER DEPENDENT. I HAVE SEEN TWO EP'S AND BOTH DO NOT WANT ME TO BE PACEMAKER DEPENDENT THAY THINK I AM TOO YOUNG. INSTEAD THEY HAVE THROWN AROUND THE IDEA OF OPEN HEART SURGERY AND HAVING THE OUTSIDE OF MY HEART ABLATE...

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I went. I'm done!

Just got my 6th pacemaker implanted. For all of you that have to go for generator failure surgery, I'm getting to be an "old hat" at it. Still it causes a bit of trepidation. Mine is now finished and it went great. This is my 6th in 32 years with a dual implanted 25 years ago. I still have the same old wires, too. So far, this was the easiest yet. They really have improved their methods of reimplantation over the years.
I have gotten alot of really great information on this site and...

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More info about my case

Hello everyone...I thought I'd fill everyone in so far on what's been done. At little history first...

Current machine placed in May, 2006 under the muscle after previous one began attempting to leave my body in Dec 2005. That machine replaced another previous machine that began trying to leave my body in July 2005 only a few short months earlier. In both cases, infection was suspected, but could not be found despite extensive blood work (including cultures), x-rays, echocardiogram. I...

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Infection

What are the chances of developing an infection at the PM site? I have an aunt who is up in her latter nineties that had a pm implant 2 months ago and developed an infection that has her in the hospital undeer hospice care. Any comments?

Sharon

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You know you're wired when...

A thirty-day guarantee is not good enough.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.