Most Recent Messages in Checkups & Settings

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More Frustration With Settings

So, after a month of tachycardia issues assisted by my overly sensitive settings on my Pacer, I had the Tech do ANOTHER adjustment on Friday afternoon. The new setting apparently shut off the standard sensitivity levels and changed to the Closed Loop Setting. Now, things should go from the Pacer shooting my HR to 120 from the simple task of taking a walk due to the vibration it feels through my body, back to normal, right? 

Friday night, everything seemed great! Saturday morni...

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A-Ha!

So this is only my second topic after having a Pacer put in due to Bradycardia at the end of December. For 3+ weeks now I've been having very strange Tachycardia issues accompanied by a fluttering feeling when walking. Sitting still, 60 BPM where the low limit is set. Exercising like dumbbell curls or squats, 75-80 BPM. Treadmill walk or simple walk from my front door to the car, 110-120 BPM? Why? After a week I had the tech check the settings and he said everything was fine, an...

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Upset with upper limit of 130bpm

Hi all, 

i am 33, and 11 days ago had a Boston scientific dual chamber pacemaker fitted. Had a checkup today and told my lower limit is 60 and upper limit is 130bpm. My issue was bradycardia and complete heart block. I'm really upset that my upper limit has been set so low. I explained this to them and they said see how I get on and if three months down the line I am struggling with exercise then they can tweak it! 3 months is a long time for me! Gym is my life, I daily get my...

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Thanks

Thanks for telling me about your experience with home monitoring. At this stage I'm thinking that I like the idea of being able to speak with the my Dr and the techs looking at the data in real time, just to get a feel for how things are going and to learn more about how adjustments can be made in respone to my symptoms and the downloaded data. But I can see how home monitoring would be useful when travelling (the Medtronic reader is battery operated, not plugged in) and al...

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Remote monitoring

I'm new to the pacing world so really appreciate all the support and good advice available from you all. My first pacemaker was implanted 6 days ago and I'm doing well and almost pain free. My cardiologist has recommended remote monitoring using the Medtronic MyCareLink Smart reader which connects with an app on my phone and sends data to Medtronic and my cardioloigist. Does anyone have experience, good or bad, with home monitoring - this system or others? Thank you!

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helping your accelerometer in rate adaptive pacing

Can anyone tell me more about tapping on your pacemaker to help increase the accelerometer function when walking up an incline or doing other non-forward motion activity?  

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Anxiety

Quick question... Has anyone ever had Anxiety cause by settings that werent properly programmed? I just feel like I am going crazy. I had a battery replacement 2 1/2 years ago, I used to have a medtronics and now I currently have a St Judes. Life was great with my Medtronics, until I got my St Judes and everything went down hill from there. Immediately when I came out of surgery I felt totally different... heart pounding, felt pacing and just really really weird. I complained to my docto...

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Still have my back pain but now my pm having episodes of speeding up

I had my usual pm check up and they found one day last January (this year) my pm speeded up for some reason?? I was just sitting here and felt a speed up not sure if it was the pm or my heart?   I had to take a real deep breath thought I was going to pass out. Anyone else have this experience?

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New pacemaker

I had my PM (Sorin Kora 250 DR) fitted on January 5th this year. Needed it as my resting pulse was low 30’s but it went down to 16 at night. Was told I had Bradycardia and AV block. In the past I have done a number of marathons and they set the PM at 50. They have now activated the ‘Rate response’ as they say that my heart didn’t adjust to any exertion. The PM is limited to 130. I have been out running again and my HR watch shows a HR of 145 plus on most of the run. Th...

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Different pacemaker

Hi,

lts been a few years since l have been on here simply because things have been so good. Had my yearly check up & the doc seems to think l may benefit from a different type of pacemaker. The main problem l have is when l walk my heart feels very irregular & seems to be working against the PM if that makes sense?which then causes me to become breathless. Apart from that l feel pretty good, anyway l have a heart monitor on for 24 hrs to see what happens when l walk. My current...

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Sleep rate and poor rate response control

Hi! 

I'm seriously hoping you can help shed light on something for me. 

I had my device changed in Dec as part of a larger op. Before the surgery I was using ventilation response which helped improve my quality of life lots. Now I only have the option of rate response which so far (9 weeks and counting) hasn't been programmed to improve things back to how they were. 

 

Now they'vactivated the sleep rate so I drop to 50 bpm which I know i...

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First pacemaker interrogation

I had my Medtronic pacemaker implanted on January 11, 2017. Today was my first interrogation.

The rep informed me that my pacemaker is pacing 0.3% of the time, or has paced roughly 13,000 times. Although that seems like a lot, I understand it really isn't.

However, is this an average percentage of pacing? I'll be 37 in March. I had to get the PM after I flat-lined in the ER for a quarter of a minute and required CPR (on January 9). I went through every test imaginable for...

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Rate Response turned off???

Implanted with a Medtronic Adapta 2012. Finally persuaded them to turn off the Rate Response a few days ago.

Finding it hard to tell if there is much difference, my heart rate still seems higher than pre implantation, so I thought I would try the biker's trick. I sat for a while to let my h.r. settle at 70 ( using a pulse oximeter ), then I thumped my chest rapidly near the P.M site. My pulse went up to 94 and dropped when I stopped. Just in case it was the exertion of the thum...

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CRT-d

When my St. Jude CRT-D installed 6months later I had my first echo done and my ejection fraction had went from 30 to 55 the next echo one year later the ejection fraction had drop to 40 should one be worried about this drop. Everything else showed up good on this report.

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Pacemaker and blood thinner

Hello I have had a pacemaker since May of last year 2016.  I just got diagnosed with A Fib and started on the blood thinner Eliquis. 

Is anyone aware that the pacemaker settings may need to be changed due to the blood thinner medication?  

Thanks - I am a new member.

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Lower limit

Have read a few posts in the past where people have commented on having their lower limit dropped.

I'm interested in what symptoms people were experiencing before the alterations. Whilst I feel so much better I still feel out of sync and not quite right when I'm relaxing watching telly, reading etc and especially when in bed either trying to drop off or when I keep wakeing up.

Have a monitor on for this weekend, then go back on the 27th to see if anything usfull showed up...

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Missed heartbeats on swallowing

Can anyone tell me if they have suffered missed heart beats each time they swallowed? Strange feeling never happened before .

two weeks ago I had an endoscopy then 8 days ago at my pm check the battery showed too low to read. 

The technition altered the settings from pm clicking in if below 60 to 30 to try to save a bit of battery until new one fitted. 

For the last 7 days I've noticed I'm a bit dizzy at times but have developed this horrible missed be...

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Rate response turned off

I had my Medtronic A2DR01 PM implanted on 1-12-17 because of SSS tachy-brady. I had no energy and felt exhausted all of the time, even after taking 3 hr naps almost every afternoon. My pacemaker was set to 60-130 with the rate response turned on (I believe the "default" settings.) I'm 65 years old and my HR prior to receiving my PM was 38-40 bpm at night and hovered around 45 bpm during the day when sitting according to my 48hr HM, with Vtach spikes of 125bpm that...

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looking for someone to relate to

Hello Everyone,

I am hoping to find someone to talk to who has had a similar experience to mine. I have had my pacemaker for about 7 months. I am now at a point where I am trying to understand the pacemaker settings in laymans terms and the condition which had me get a pacemaker in the first place. I  know we are all different but I am hoping to find at least one person whom I can relate to and who can offer some advise because of the similarities we might share. I am a health...

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THANKS HOPEFUL HEART AND BIONIC BEAT

THANKS HOPEFUL HEART AND BIONIC BEAT  I DID FEEL A BIT OLD AND HIS YOUTH REALLY WAS EVIDENT AND ALL I CAN SAY IS I WISH I WAS A BIT YOUNGER AGAIN...THEY LOOK LIKE BABIES THE DRS. NOW. BRINGS YOU BACK TO THE IST YEAR OF NURSING. WONT MENTION THE YEAR. HOPE YOU ARE FEELING A BIT BETER AND ON THE MEND. BEST TO BOTH OF YOU JESSIE

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