Most Recent Messages in General Posting

Post Message!

new years resolution

Wishing everyone a better new year.

My resolution is to learn to ignore the "inner child" when she says it is ok to eat these  two slices of pizza or a couple of pieces  of rye bread.  When the adult in me says no, it is not good for my A-fib episodes.

Just looked around my home nothing like that is here.

Will keep you posted on how we do. 

new to pace

Read More...

Future

Thank you 🙏🏻 Gemita for deleting my accidental double post. I did try to deleted...no success. Maybe you should post me a note how to?! 🙏🏻❤️

In six year since my implant I did not have a single fainting episode.... if I  excluding some  "weirdness"  after my Covid jab⁉️😁....heard from other folks the same.....thankfully it only happened with the first jab....had 3 in total😊

Me and my husband are Nature lovers.... always on the move...time permitting....

Read More...

XMAS - 2023🙏

Hello All,

Bit late about Xmas wish list for Pacemaker manufacturers-engineeries...but here is mine🤗  All your wish list posts are great and valid;  however even if they did all exist, I for one didn't know what was going to happen to me (my first and last fainting) I hope 🙏🏻🍀......so choosing options was out for me and perhaps 🤔 for many of you 😊

I have received Medtronic dual lead in 2016 for Ventricular Standstill & Brad...

Read More...

1% pacing only - removal of PM ?

Hello! 

Our child got her PM 2 years ago after syncopes and faintings. 11 seconds pauses at night.

Complete heart block with unclear cause. Never any heart issues before. Meanwile doctors believe it was caused by mild Covid or another virus and it might be recovered.

Since it was implantated it always only had 1% performance. The 1% can result from the daily self checks or it can be that the PM has to do its job, but very seldomly. Nobody could tell us so far if the pm...

Read More...

Pictures

I just discovered how to upload my photos 🤣 .....Millie 3+9🙏

Read More...

Success

Just like to say I am jumping up and down as I was finally able to login🤗
I am from Australia and my first pacemaker was fitted 2016. Did not know I had Bradicardia until I have fainted (1st time) while on my little foldable bicycle and unfortunately sustained moderate head injuries....ended in hospital for 18 days. While in ICU I had Ventricular pauses - standstill and the rest is history ❤️ I am super fit and active all my life...now 71yo. Feel actually grateful to the whole episo...

Read More...

Pacing or...?

Hi all! Merry Christmas Eve!

Sooo...I primarily had my device implanted 4 years ago for the ICD function but I also have the pacemaker function. Today, I was just resting on the couch and I got a little startled by what felt like a small electrical impulse. It felt a bit like what it feels like when they test my device at checkups. I have a little device at home that can check your pulse, so my husband put it on my finger almost right away. My pulse was in the 50's at...

Read More...

A Christmas Wish

Hello everyone, if you could change one or two things about your pacemaker, what would it be and what message would you send to your pacemaker manufacturer?

My message would be:

Dear Medtronic, My husband and I would both like to know if you could develop a pacemaker setting that could prevent a fall in our blood pressure like you have so successfully developed to prevent a fall in our heart rate?  We are taking blood pressure and heart rate reducing meds but very occ...

Read More...

Recent poll

Just curious who set up the most recent poll about the home monitor. I didn't participate because it didn't have my answer or anything close to my situation.

For future polls I think it should have included a response of every three months or less.

Read More...

wishing all a very happy holiday

to all the wonderful people who i can call friends and the advice you offer may you never change. Your integrity and character that you employ has been a true blessing when i needed healing and advice, and for that i am ever grateful.  

Read More...

Pacemaker replacement cost

I have an Adapta pm implanted in 2010 and coming up on my first replacement soon. Medtronic told me the battery is encased so it won't be a battery change, but a pm replacement, keeping the same leads. My big concern here is my current cardiologist, who is wonderful, doesn't take my insurance. I tried to switch, but they don't take any of the three insurance providers available where I live. I'm trying to get the medical codes and cost, but does anyone know how much yours cost...

Read More...

Repositioning complete!

My CRT-D was repositioned last Wednesday.  I was admitted by noon the day before for pre-op testing.  My nerves were through the roof....a normal reaction for me.  I was admitted into the CCU, and surgery was changed from 830 am to 11 am and then, 6 am Wednesday morning, they came to get me for 8 am surgery!  I was so nervous I didn't get much sleep and was ready when they came to get me, and staff seemed unaware of the schedule change.  The surgery turned out to...

Read More...

Sleeplessness

I had my pacemaker procedure three years ago and it was a new life given to me then, I can do so much without running out of breath and am really happy about it.

Recently I found it very difficult to sleep at night, my quality of sleep has gone down dramatically and begins to worry. 

Has anyone had similar experienced before and what have you done to solve it, please?

 

Read More...

Chest infection and pacemaker refit tomorrow

I had a pacemaker fitted end of September. Unfortunately it didn't connect properly and one of the wires is not working. 

I am due to have this corrected tomorrow. However on Friday I saw my G.P because I have come down with a chest infection.The doctor thought it was adult croup.I am now on steroids and antibiotics The G.P didn't advise to cancel tomorrow's cardiac appointment,but since Iam not much better,should I still be having the pacemaker surgery?

Read More...

Atrial High Rate Episodes

Hi, 

I've recently had some Atrial High Rate Episodes recorded by my device and was told that they mean 'Atrial Fibrillation', although my previous pacing team told me that they were Atrial Tachycardia.  They happened during an exercise test when my heart rate rose to a higher rate than it usually manages and the pacemaker was therefore able to record them for the first time.   It seems that my device can only detect atrial arrhythmia...

Read More...

Sleep / Afib

Hello everybody. Hopefullly I can get a little help or at least learn that I'm not the only one going through these things:

1) I have had my bi-v since 2016, and lately I can't go to sleep at a good time because I lay in the bed listening to my heart beat. On top pf that, I am only sleeping 4-5 hours a night. How do I get past anxiously listening to my heart beat every night? So far I have tried going to sleep with headphones listening to music, but to no avail.

2) La...

Read More...

Can high HDL (Good Cholesterol) actually be dangerous?

I made a startling discovery in the previous month, and so I thought I'd throw this out there in case anyone can benefit and/or just has an interest. I had two relatively minor strokes last month and was hospitalized for several days. Please understand that I am not suggesting you can draw any definitive conclusions from the info I am providing here. There is a need for much more research. So please draw you own conclusions.

I went to the ER twice over a two week period last month,...

Read More...

Industrial Generator

I have started a casual job to help out with cost of living. 

Part of this roll is to enter a steel container that holds a generator and start it up  then at the end of the day step back in while it's running to turn it off.

Both procedures only takes a few minutes whats your thoughts on this?

I have tried Google but I can't get a clear answer 

Thanks to any one who answer's 

Moe xx

 

Read More...

Intermittent high pulse after cardioversion

I have a PM primarily for SSS. Lately, I've developed Afib. It was pretty debilitating so after meds did nothing, I had a cardioversion a couple of weeks ago. That fixed it (I know that Afib often comes back). My PM is set for a resting rate of 55, and if Afibbing atriums attempt to drive the ventricles too fast, the PM does a mode switch at 130 bpm to disconnect the upper and lower halves of the heart; I can tell when this has happened because the resting rate in DDI mode...

Read More...

On a lighter note

My youngest daughter the physiotherapist in Sarasota just texted me this.

"There are FOUR Sam’s working in the ICU today 😳"

 

 

Read More...

You know you're wired when...

You have a T-shirt that reads “Wired4Sound”.

Member Quotes

My pacemaker is the best thing that every happened to me, had I not got it I would not be here today.