Most Recent Messages in ICDs

ICD

In August of 2016 I had an emergency pacemaker implant.  All was fine and I was back to myself very quickly.  In January of 2018, my pacemaker was removed and replaced with an ICD because of ventricular tachycardia.  The recover was not so easy.  I had major swelling at the sight.  Now the swelling is all down, but the site is painful.  Also, You can see the device and what looks like leads.  I’m not so concerned about the look of the site, but the con...

Read More...

ICD extreme tenderness & pain

I am 45 years old. I have had Hypertrophic Cardiomyopathy since birth but, was not diagnosed until I was 13 yrs old.  Been on meds since then. I got an ICD on Jan 23, 2018 & am experiencing  EXTREME tenderness, pain in area & below of ICD. Can not barely touch it without pain & I get tingling & pain there. It is extremely bulged out.  Is this normal to be hurting there still after 4 months??  I am so sick & tired of it. I a...

Read More...

iCD in power plant

New to the forum, first post.  After having an ablation done for a fib a few years ago, two weeks ago I suffered a ventricular tachycardia and had an icd implanted. I am an engineer in a power facility with two 4000 KW steam turbine generators as well as transformers, electrical breakers, diesel generators, etc. I am having trouble finding out if it’s safe for me to go back to work or if I have to retire two years early. If anyone has any input regarding th...

Read More...

ICD Fired this morning 4:10 AM

Implanted Feb 28, 2018. I was told most people live a complete life with it never going off.

I called 911 and was taken to the local hopital, xray blood tests and sent home with. Well it did exacly what it was supposed to do and good luck, these things go off all the time.

I will call my GP and cardiologist on monday, but now I'm worried that things are just going to go downhill from here. When will if fire next, what can I expect? How can I go to sleep tonight?

Read More...

CRT-D verses meds

I had a CRT-D implanted Dec 2016 after an electrical storm I was also put on 200 mg of ameoderon a day.

My question  is isn't the Crt-d doing the same as meds why do I need both.  Will the Crt-d keep my heart beating at the proper rate without the meds

Read More...

Ameoderane

Has anyone stopped taking ameoderane after having a crtd implanted

Read More...

Pacemaker may have saved my life

I am brand new to this forum, though I have been an avid reader. I decided to join because of what happened to me very recently. 

I received a pacemaker after I went to the emergency room with erratic heart beats. Three weeks prior, I had a crash on my bicycle that included me blacking out. At the hospital, a cardiologist monitored me for 4 days and together we decided a pacemaker was what was needed. 

Problem was, it wasn’t. 

I went through al...

Read More...

boston scientific model g247 CRTD

Hi.  Im new.  Just had device installed this past Monday.  Have a few questions.

Went to mall yesterday. In and out 5 stores and heart was uncomfortable  Rate went crazy. Husband wit me and pulse reader on. Tried driving my car. Both bluetooth in car and phone off  same results. 

Was just sitting watching tv felt a few pvcs and then a small pop  not painful center of chest 10 minutes later another small pop.

Saw EP yesterday said all ok but...

Read More...

Driving?

Ugh.  My ICD just fired -  first time for this device -  second "appropriate" shock in 11 years -  (one other when  a recalled Medtronic lead broke, and two when a Boston scientific  device failed a mere five weeks after implantation - and the techs were messing around to see if they could get it to do anything - all they accomplished was shocking me twice before determining I needed a new implant..........)  -  any way -  I cannot f...

Read More...

How did you feel after an ICD implant

  • by Johnl
  • 2018-04-21 03:18:46
  • ICDs
  • 1936 views
  • 5 comments

I had a ICD implanted 4 weeks ago now and I have felt 10x worse since the surgery, I'm a 25 year old Male, very fit and active before implant and now I can barely get out of bed longer then half hour. 

I constantly have an odd feeling around the heart, it's hard to explain. Dizziness is more frequent then before. 

I thought it was normal to start with but it seems to get worse as time goes on,

Has anyone been through the same thing, is there something wrong...

Read More...

HAD AN EPISODE ALERT

DOCTOR CALLED ME SAYING I HAD AN EPISODE 2AM WHILE I WAS SLEEPING ???? IF IT HAPPENS AGAIN I HAVE TO GO INTO THE HOSPITAL.ANYONE HAVE A SIMILAR

Read More...

Blockages

IF I HAD A PARTIAL BLOCKAGE WOULD THE PACEMAKER MONITOR SHOW IT? I HAVE SHORTNESS OF BREATH AND CLEAN X RAYS OF CHEST

Read More...

Shocked 24 times Almost DIED....HELP

My first ICD was a single lead St. Jude device.  This was put in 2007 due to having an episode of VT.  I was also told that I had Cardio Myopathy.  Installing the device was like an insurance policy.  That device shocked me 7 times by reading SVT as VT 2 years later.  The unit was replaced due to a low battery, got an infection, and an IV for 6 months. 

The unit and the lead were removed in Nov. of 2013 and a dual unit installed on the right side  &nbs...

Read More...

CRT-D heartbeat still irregular?

I have had my CRT-D since 2/1/18 for LBBB. Everything has been going great. I am healing and Im feeling better each week. I have only had my first checkup 12 days after pm with tech. He said everything looked fine. I will see doctor in April. I am waiting to start cardio rehab so I can find out exercises I can do. I am ready to get back in shape. I have gotten myself walking one hour every morning with no discomfort or SOB. I have one concern. Whenever I take my bp at times my machine sh...

Read More...

MRI friendly ICD

Hi I’ve recently had a pacemaker fitted but now need an ICD. Are there any MRI friendly ICDs available privately in the UK? I assume they aren’t generally available on the NHS.

Read More...

New Pacemaker Club Member

Aloha Pacemaker Club,

New member and first post.  I have a question for y’all.  Are we able to post pictures and/or videos on here?

 

’O ka manawa lua.

Second chance heart.

- jon 

Read More...

Ground Hogs day

sitting here working on a painting and being the couch potato, American for lazy, I am didn't bother to turn off the television. Apparently some crime show was on detailing an actual murder in Texas. Now normally this wouldn't be a topic for this site but for the bizarre role a defibrillator played.

Now it seems this prominent man in a Texas town was discovered dead. During his autopsy they discovered he had a defibrillator implanted and being creative decided to see if the...

Read More...

Sure

Sure I get a lifetime achievement award and nobody informs me.

Blake why didn't you tell me I was banished from the site, I'd have worn my tux and gotten a date for the ceremony. Always last to know...or is Robin mistaken as usual?

Read More...

Many Shocks

I just had a lead come detached.  I was shocked continually for several minutes until we got enough magnts off our refrigerator, hour and a half later I was at the hospital and got to the hospital and had it turned off for REAL.  I now have a new ICD and I am very anxious it might happen again, although I have been assured it won't.  I guess what I need are some ideas to become less anxiious.

Thanks, Karen

Read More...

Many Shocks

I just had a lead come detached.  I was shocked continually for several minutes until we got enough magnts off our refrigerator, hour and a half later I was at the hospital and got to the hospital and had it turned off for REAL.  I now have a new ICD and I am very anxious it might happen again, although I have been assured it won't.  I guess what I need are some ideas to become less anxiious.

Thanks, Karen

Read More...

You know you're wired when...

Friends call you the bionic man.

Member Quotes

Life is finally better.