Sorry...
- by Lulu Moppet
- 2010-07-08 08:07:03
- Surgery & Recovery
- 1619 views
- 7 comments
...for not being upbeat. Many people on this forum were kind and helpful before my PM implant 2 days ago. I appreciate that and don't want to upset anyone else who might be facing a PM. I can't be positive, though. The experience was a nightmare. I'm terrified of needles and have had some bad experiences with medical professionals who ranged from cold to downright mean. The thought of local anesthesia and a machine implanted in my chest was horrifying. The night before the surgery, I decided I wasn't going through with it and felt quite at peace with my decision. My husband, who (God knows why) wants me around, begged me to have the procedure. I finally agreed, planning to commit suicide after he went to sleep, but he watched me like a hawk all night. Sleepless and numb, I kept going through the motions, and ended up in pre-op in full panic attack, crying and begging them to leave me alone and let me die in peace if need be. They gave me Valium (which I shouldn't have taken; it just impaired my ability to explain my feelings) and said they'd have the cardiologist come talk to me. He did--he snarled at me. He's well known for his miserable bedside manner, but everyone said he was the best at this. In all fairness, I snapped at him, thanking him for his "warmth," and told him how terrified he was. He didn't care. While we were sparring, the nurse shoved an IV in my vein and it was too late. They gave me versed through the IV, but I felt every injection, every cut, the insertion of the wires, every suture. It was as primitive as pre-anesthesia days. I kept asking them why (my head was covered by a tent thing) but they just gave me more and more Versed--I later found out it was the most he'd ever given anyone (I'm 5'2, 133 lbs.). I also learned later from the cardiologist's PA (who has human feelings) that panic releases the body's "fight or flight" chemistry; I was so freaked out that neither the Versed or the local was able to work.
This was one of the worst experiences of my life. I'll never forget or get past it. I had panic attacks afterward in the hospital afterward; they wouldn't let me leave until I agreed to see a psychiatrist. Ironically, I've been seeing one for years, and he and I had agreed a couple of months ago that I didn't need more therapy--I'd felt happy and at peace for some time until this happened. I agreed, and they let me come home. Obviously, I'm deeply depressed.
I've had major surgery before with general anesthesia and done just fine, but this surgeon says it's dangerous for this procedure, though many people on this board say they had it.
I will never allow myself to be hospitalized again for any reason if I can possibly prevent it. If the battery on this device fails, or other complications occur, I will not allow it to be replaced. Perhaps if you have no phobias, and you're confident about dealing with arrogant, patronizing medical professionals, the PM will be the breeze, or minor discomfort, that it was for so many. For me, it was hell. Having my heart stop for 10 seconds, as it apparently does, or permanently, would have been infinitely better.
7 Comments
Misery loves...
by Lulu Moppet - 2010-07-09 01:07:46
I realized how self pitying I sound, and I'm sorry. I know lots of people have far, far worse things to deal with. What bothers me is the fact that one's worst nightmares can and do come true. You can't let your guard down for one second.
Though I wish others hadn't gone through what I did, I appreciate knowing that I'm not the only one who panicked or for whom the meds didn't work.
You're all good people and I wish you the best.
I am so sorry!
by tcrabtree85 - 2010-07-09 04:07:06
I am so sorry about your experience. I felt everything also and remember clearly what it felt like. It's very hard getting over those memories and the fears that come with them. Though I think it will come when your energy starts getting higher from having a pacer.
I pray that you can see how much your husband loves you and needs you and wants to help you. Let him be part of this experience.
My thoughts are with you. I know that it's hard right now but by the sounds of it you are one strong women and can get past this part.
Blessings,
Tammy
i hope you soon feel better
by Hot Heart - 2010-07-09 06:07:33
i was so scared i had to have valium but it was fine and i chatted to the lovely nurse who held my hand all the way through. I dont like the idea of the tent over the head though I was able to look at the screen or not as I chose, I just focussed on the nurse most of the time and the doctor showed me the pm and the leads before he put them in.
You dont sound sellf pitying, I'm scared to death of going to the dentist for a filling, sooner have a pm!
Look, living with a pm is better than being dead without one isnt it? None of us likes the idea or looks forward to it, I'm sure part of the problem is the unknown, you have done it now, well done
HH
Please get help from someone
by cruz - 2010-07-09 11:07:01
I didn't have the problems with the pm/defib that you did, but I've had many depressing days thinking about the problems and the changes this had made in my life and the life of my family. You will have days that are depressing ahead and I hope you find someone you can talk to and get advice. Even though the Boards are good, it's nice to have someone in person you can confide in that's not family and doesn't judge you.
It is over
by grandpageo7 - 2010-07-09 12:07:22
I too have the same problem with fight or flight, when I get scared no medicine will help. I have walked out of a MRI in my gown because they tried to put me in that thing. This was with me taking anxiety medicine for it. I get like a bull in a china shop. My pacemaker insert I told them I was scared and they knocked me out all the way but they also did a TEE and a cardio conversion at the same time. As my brother says "It is over get off the couch" Prayer helps me calm down a lot. They have medicine that will help your mind to stop dwelling on things. When my pacemaker gets to bothering me, I think of what people went through when there was no such a thing. Good luck and be glad that pacemakers was invented.
Jean
Sad for you
by rvrs7081 - 2010-07-12 04:07:27
I never did have the problems you have. My sugery for the pm was quick, unexpected and over in 14 minutes. Since then, I have had my bad days. A little depression. But it is over soon for me. I am truly blessed.
Suicide doesn't solve anything really, (my daughter took her own life when she was 19). The memory haunts me still for over 30 years. It can destory loved ones who always think they should have done "something". Please don't put your husband through that pain.
I do hope you find someone who can help you through the depression. So many of us in the club know and understand. I wish you well. Ann
You know you're wired when...
You run like the bionic woman.
Member Quotes
I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.
LuLu
by LS - 2010-07-09 01:07:00
planning to commit suicide after he went to sleep,
The above is your quote.
I'm sorry you had such a horrible experience.
I hope you have an uneventful, & speedy recovery.
I also hope you continue with your therapist. I believe if some one threatens suicide, one day they will succeed.
Liz