Bad experience

I'm 41 and had my pacemaker put in October of last year. I'm still struggling with getting the rate response set to where I like it. I went to the pacemaker clinic on Tuesday and met with the tech and the Medtronic rep. After several attempts to help me I left the office not feeling very well. I knew they turned on the atrial preference pacing, but what I didn't know was they changed my threshold rate from med/high to med/low. I was experiencing rapid heart rate during minimal activity, so they had me come in on Wednesday to turn off the preference pacing, but never changed back the threshold rate. I knew something wasn't right and called the cardio office Thursday to complain about it. I was told that all the settings were changed back to EXACTLY the way they were prior to Tuesday and to start taking a beta blocker to help lower my heart rate. I was told there was NO WAY the pacemaker was causing this problem. I wasn't buying it because I had them change the threshold once before and knew how it felt. They assured me this didn't happen and to take the beta blocker. Basically I felt forced to take it. I called the office today and had them fax me a copy of my last 4 pacer checks and sure enough the setting had been changed. When I called back the receptionist told me that I was over thinking this, and that I was topic of conversation yesterday, and I really need to quit thinking about my heart rate, and take a pill, and quit calling the office to complain. I was told the pacer tech was out, as well as the nurse. I then asked to speak with the office manager and he said she can't help you fix anything and I said and you being the receptionist can?? I was told the doctor would call me and he suggested I take a pill and wait for him to call. Good thing I didn't take the pill because he never called. I contacted a friend of mine who is a pacer tech and she had me come into her office and changed the setting back to med/high and now, NO MORE TACHYCARDIA. I'm so upset that they were going to force me to take medication to try and fix something without hearing me out. How many other people does this happen to? I was lucky enough to know better, just because I had felt that way once before, but to have a doctor not believe me just really upsets me. Always listen to what your instincts are telling you!!! I thank God that I have a friend that was able to help me today or I would be sitting here with a fast heart rate and a beta blocker not doing anything for it.


5 Comments

Write them a letter

by ElectricFrank - 2012-03-10 02:03:46

Put your complaint in writing and send a copy to the office certified mail return receipt. Don't get into medical reasons for your choice as they are seen as the "experts" on this. Basically mention that you have been lied to about the settings.This is a serious offense.

I would also consider finding another cardiologist to handle your checkups.

By the way don't blame the Medtronic rep for this. Medical politics make the rep follow the doctors orders and not discuss the situation with the patient. I ran into this early on and made it very clear to the cardiologist that I was aware of and wouldn't tolerate the situation.

If you change cardiologists, be sure and find one that uses the Medtronics rep and make your feelings known about all this.

It's unfortunate that we have to be so aggressive as patients, but it's the nature of medicine. I've found that once I get an understanding with a doctor though that I develop a friendly relationship.

good luck,

frank

Thanks!

by tammy11 - 2012-03-10 08:03:10

Thank you, Frank for the advise. I was so upset about what happened that I didn't even think about sending them a letter.

Up until now I was really happy with this doctor. I was considering scheduling a consult with him, but I'm so angry right now, I'm not sure how it would turn out.

Thanks again and I can't tell you enough how much I love this site!!!

Tammy

Bad Experience

by Grateful Heart - 2012-03-11 12:03:55

Frank of course, has great advice. I never wrote a letter. In December of '08, I wound up in the hospital 18 days after the initial implant with pain deep in my chest. They gave me morphine and pills for the pain and 1 male nurse treated me and spoke to me like I was a drug addict…he said I just wanted the drugs. I have never taken any illegal drugs in my life and I will never go back to that hospital. It was all such a bad experience.

After 2 days and all kinds of tests, the doctor told me there was nothing wrong with my heart and he sent me home, even though I told him I still had the pain. He didn’t listen to me. It was so upsetting!!

After about 5 more days of the pain getting worse, I went for another opinion and the new doctor did an echo and discovered fluid around my heart. They never did an echo when I was in that hospital.

You did the right thing by not giving up. We know our bodies better than anyone else. We have to be our own advocate. Search for a doctor who will listen to you and hopefully, he will continue to listen. I wish you the best.

Thanks!

by tammy11 - 2012-03-12 09:03:18

Thank you, Grateful Heart!! I'm sorry you had to go through that as well. We were fortunate enough to stand up for our selves, but I feel sorry for the ones who can't.

Another suggestion

by ElectricFrank - 2012-03-13 01:03:27

Always write down the name (its on their name tag) of any hospital staff like nurses, contract doctors, etc who don't treat you with respect. Especially when you get one who accuses you of trying to get drugs and implying you really aren't in pain. Later when they actually find a problem you can write a letter to the hospital and point out that you actually had a medical condition and weren't taken seriously. It helps all of us.

frank

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