Pacer dependent after av node abaltion

Hi everyone

Just a little update..after my cryoablation I had done on march 20th my junctional tachycardia got quite a bit worse,(the dr also diagnosed me with pacemaker syndrome after the cryo) so after the cryo they went in and did a RF abaltion on april 9th and thought they had it fixed. 2 days later the arrythemia returned with a vengence. I was feeling so bad, my color was grey, my heart was not profusing well, and I really felt like I was not going to be able to hang on much longer if they didn't do something very soon.

On wednesday (4/24) they took me back into surgery, I was under the impression up until surgery that they were still going to do try to find the area causing the arrythemia but when he came over to talk to me he said that after looking through everything and my ecg he had decided to do the av node ablation, he said I had been through enough! I had 6 ablations and a pacemaker change out in 14 months. I cannot tell you have GREAT I feel!! I feel good and normal, my chest doesn't hurt anymore, I can walk without feeling I'm going go pass out and from what other people tell me, my color is much better. I do not have any regrets about any of the decisions I have made and either does my dr. I also feel like I have so much energy that I could almost run a marathon!!

The only issue I'm having is some burning in my chest but I'm guessing that is just irration from the past 3 surgeries and ablating.

The dr also told me that I do have a back up escape rhythm of 35 which makes me relieved so at least I know I have something if my pacemaker would fail.

Thank you everyone who has made comments in the past..it really does help when you have someone to turn to!!

Holly

3 Comments

im glade your feeling better now

by my4turtles - 2013-04-27 07:04:22

My DR's and i have talked about doing this with me and the only thing that is stopping him is my age 37 !!
but too be honest i dont fill 37 .. i cant walk to long heck if i should try to run god knows what should happen haha.. at times if i even walk to the bathroom by the time i get there im bent over the sink because im going to pass out. I have had a lot off ablations like you as well as my sinus node ablated twice.. i do have a pacemaker and he is for ever changing the settings on it but nothign seems to work.
they have me on 2 meds to try to help but now my BP is super low and my paulse now gets very low.. what i would give to be able to fill me age ..
Im happy to hear your feeling better .

Age

by daisy0388 - 2013-04-27 08:04:55

My age is also only 37 but yet I felt as if I was 77. I too had my sinus node ablated 3 times before I got the pacer last year. What have you been diagnosed with? Alls I can say that I feel like a million bucks and it was well worth it!

i would loe to feel better

by my4turtles - 2013-04-28 01:04:39

wow your 37 also..I also feel like im 77+ it suck's huh?
They also told me i have junctional tachycardia, a fib, and several other things that at this point i have just lost track. It seems like every time they get one thing fixed or under control and than something new happens. I have never felt good even since i have had the pacemaker.
When i was in a couple weeks ago they did notice that im getting more extra beats in the lower chamber or sinus node which he said is harder to treat. With that area he said to treat that i would have to be 100% dependant which i have no problem with if i have a chance off feeling better.. Im not sure why my Dr wants to do it only if he has too...

You know you're wired when...

You can feel your fingers and toes again.

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