Advice

My name is Kristen, I am 27 years old. The last few years have been really hard on me. I had an injury to my back that compressed my Vagus nerve ( no test can prove this) but I was a perfectly healthy individual before the incident. After I started going through random heart rates always to the extreme, either extremely low to extremely high, light headedness, and I started blacking out, and even on medication my problems persisted. I had a icm implanted and it caught an episode of V-tech 250 bpm for 5 minutes then my heart stopped for 2 minutes, and luckily started up again at the lower end of 30 bpm. I had a st. Jude icd implanted right away. I have had numerous inappropriate shocks, because the device started slipping and pulling on my leads. Also it would pick up on my vesovagul symptoms and try and correct those rhythms. I still suffer from svt and dizziness. I had an ep study done and the couldn't endues anything. Now they think its my hearts own natural pacemaker that is not correctly working. There is nothing but meds they can do for that. I just want to know is anyone going through or dealing with a situation like mine. I just don't know what to do anymore.

1 Comments

hi

by Ajfcabin - 2013-06-20 12:06:50

Hello. I had an icd placed two weeks ago. Originally i had a tach as a teenager and was controlled by meds...then had two failed ablations. About 5 years later I had bradycardia issues and needed a pacer which Ive had for two years. then a couple weeks ago I felt like I was going to pass out while driving and was told I had a bad epsidoe of v tach v fib that I came out of on my own. I had all tests including mri...echo...ect and nothign structural was found. So they did another ep study and were unable to find anythign to ablate so I had to get an icd and put on beta blocker.

So its unknown what it going on if its just genetics causingheart block a tachy and now v tach problems. I am struggling because there is no diagnosis and im afraid it could get worse. But im hoping the meds help and prevent any problems but i have the icd incase I need it.

You know you're wired when...

The meaning of personal computer is taken a step further.

Member Quotes

At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!