Another newbie

  • by Cyril
  • 2013-07-05 05:07:04
  • ICDs
  • 1572 views
  • 3 comments

Hi Everyone,

I'm Cyril from the UK and have just joined the forum.

Until March 5th 2010 I considered myself a very healthy and fit 62 year old. That day, whilst on my way to a school friend's funeral (he died of a heart attack) I blacked out whilst driving at 75mph on the motorway not far from Bristol. I was fortunate, and survived uninjured but was taken to hospital by a friend where I was diagnosed with Brugada Syndrome and fitted with an ICD.

When I came out of hospital I wrote a piece about my experience, with the heading "It can happen to anyone, anywhere, at anytime!" and used it to raise money during 'Heart Rhythm Week'; an awareness week run by the Arrhythmia Alliance in the UK - enough money was donated within hours to provide an AED in a secure cabinet for my village.

Life was soon back to normal (apart from not driving for 6 months) with me doing everything I used to. I do though have occasional days when there are a lot of missed heartbeats and I get exhausted doing nothing, so I just go to bed and sleep it off. I regard the ICD not as an intrusion, but as an accessory for my ''disability' much as I would regard a walking stick if I had a problem with my leg.

I am the local Subpostmaster and also a clockmaker. I still walk my dogs three times a day (about 5 miles each day) so there is plenty to keep me busy.

Cyril.


3 Comments

Welcome, Cyril

by Bevof NC - 2013-07-05 11:07:27

Wow, You are awesome...What a great contribution to your village! I too have an Icd. I'm not even aware I have it most of the time. I'm very lucky not to have ever been shocked yet. I guess if I am shocked-that will still be lucky..lol I'm 72 and do whatever I want. Mow the grass(not a riding mower, Just painted a tall out building on a very tall ladder. Play ball with the grand children and am the healthiest person I know. Still have something to do....guess I will find out someday what it is. Again-WELCOME. You will love the people in this very special club. Bev

Thanks

by Cyril - 2013-07-06 01:07:16

Hi Bev/Grateful Heart,

Thanks so much for the warm welcome.

It's good to see that posts actually get replied to, and that the forum is very much alive. I have watched forums where replies or even acknowledgements of new members just don't happen; and that is sad. There are people out there with problems who are looking for help, guidance or assurance from fellow sufferers but they obviously don't get it from some forums - even those run by professionals.

Fortunately I have no problems to speak of, and live a normal healthy life 99% of the time. The ICD just sits there monitoring the situation, waiting to spring into action if necessary. It has given me two inappropriate shocks (one after the other, whilst my heart rate was raised making a complaint by phone) so I know it works.

I'm still getting used to the layout of the forum, so I'm off to browse some other sections.

Speak to you soon,

All the best,

Cyril.

Welcome to the club

by Grateful Heart - 2013-07-06 01:07:20

Great attitude!! That is so important in recovery. Very sorry about your friend. I too have an ICD.

I agree with Bev, what a great community service.

You may just need a few adjustments to your settings, which is typical for many of us. I have had a few now. Really, you shouldn't have to "go to bed and sleep it off". Sometimes it takes a few times to get it right....again, typical.

Bev: you are awesome... and you have a lot more energy than I !!!!

Grateful Heart

You know you're wired when...

Microwave ovens make you spark.

Member Quotes

I'm 44, active and have had my device for two years. I love it as I can run again and enjoy working out without feeling like I'm an old man.