my icd

hi im jayne i ve had my icd for just over four years, its changed my life i died in my sister s kitchen spent two weeks in hospital they fitted my icd and it took me quite a long time to get used to this thing in my chest but i did . its shocked me five times in four years and it feels like being kicked in the chest by a horse and i m really tired after but it saves my life every time , i have long q t type three a genetic condition i ve had all my life but never knew it only became a problem when my husband left me after 31 years it was all the stress that triggered it . really just wanted to say if your facing having a device fitted don t worry to much you do get used to the i c d very quickly

1 Comments

hi

by Ajfcabin - 2013-08-14 04:08:42

Hi Jayknee,

Thanks for you advice. I recently got upgraded to an icd after a bad rhythm was caught on my pacemaker and I almost fainted. I am being tested for a bunch of genetic conduction problems including long qt but I also have heart block. Im glad you are use to it now. I am not use to it yet. I know its there to save me but I still get anxiety about driving (I drive for work from house to house during the day) and when Im alone I get anxious that somethign bad will happen. Im 28 and was going to start a family but now I waiting to see genetic results to see if they show any particular genetic issue that could be tested in children. Do you have any children? Do you drive? And have you passed out before you were shocked or were you awake?

Thanks

You know you're wired when...

You have a little piece of high-tech in your chest.

Member Quotes

It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.