Newbie with ICD/Pacemaker concern

I just joined the site and I'm truly glad I came across it because I have felt that I didn't know where to go with questions. I am 33 and I have Long QT syndrome. I had my ICD put in last year, in October of 2014 after I had an episode of SCD while driving my car. Over the past couple of months I have noticed that I feel my "box" thump every night at 11:57 pm. You could set a clock by it. It goes on for about 30 seconds and then stops. Just wondering if this was something normal? I told my doc about it and they looked at me like I was crazy. Any thoughts would be greatly appreciated!

4 Comments

Self Test

by k.rize - 2016-03-07 01:03:02

It's funny I actually didn't notice it as bad last night after I got the answer it was a self test. After I went into VTach last March and got a real nice shock I go through periods where I am terrified something is going wrong with either the icd or me. I guess I am still adjusting a year and a half later! This site definitely is the best! I didn't know where to turn with my questions before and I'm so happy I stumbled across this site!

self test

by Tracey_E - 2016-03-07 01:03:26

That's probably the self test! Either ask them to make it later in the night or if it's waking you up, ask if it can be turned off.

Thank You

by k.rize - 2016-03-07 04:03:46

Thank you so much! I figured it was something like that but I didn't know they could manipulate it. It's so uncomfortable but it doesn't seem to wake me up so I will definitely see about getting it set for later. Thanks again!

Self test

by snorko - 2016-03-07 07:03:26

If you live in an area with time change, it will change by an hour too! Eventually though, it will likely move to a time when you are sleeping. I feel mine from time to time as well. It looks for a time when your heart rate is steady so usually it happens at night. Once I realized this was a self test, I stopped noticing it so much.

Isn't this site the best?

Trisha

You know you're wired when...

You have a shocking personality.

Member Quotes

Your heart’s electrical system has a manmade helper. A helper that only knows to do what it is programmed to do and will perform that function day in and day out, without fail. Now, go enjoy your new grip on life.