This is me at the wrong settings
- by AddieJ
- 2016-11-06 22:57:06
- Exercise & Sports
- 1356 views
- 3 comments
Reading these posts gives me (some) hope. Several of you describe my feelings well. I am an (old-69) marathoner who cannot run more than a few miles now, since implantation of a single lead St. Jude PM for SSS. I start off fine, but pretty quickly cannot go on. It's as though I have a leash or someone hands me 100 lbs. to carry. My electro physiologist doesn't care....I'm alive, and not passing out anymore so what am I complaining about, according to him.......I need to find someone who can help me. I also have leukemia but it's not bothering me at all right now, my counts are really good, and I want to run a winter marathon or two.....next year I may not be able to. I have sudden episodes of weakness, even when not running. I see my electro-physiologist on the 21st. He's just got to listen this time. Dr.s don't listen to old ladies....but I'll try the PA. Sigh.
3 Comments
ADDIEJ
by IAN MC - 2016-11-07 13:05:19
First of all, you are not old ! In fact you are the same age as Hilary Clinton who believes that she has enough stamina to run your country !
There are two possibilities with your running :-
i) this is as good as it gets or ii ) it isn't .
The only way to find out if (i) applies is to find out what is happening to your body when you get breathless. If you can persuade your EP to wire you up while you run on a treadmill you may find out. To help him ( because diagnosis of the reasons for breatlessness is not always easy ) go out running ,measure your heart rate and blood pressure at that moment when you weaken after a few miles; and give him feedback !
It may be an easy fix with PM adjustments, or it may not. There may be a totally different cause.
Best of luck
Ian ( I am an ex marathon-runner who is even older than Hilary Clinton )
Doctor will need to replicate the problem to address
by PaulFromSydney - 2016-11-11 01:32:20
I responsed to a previous post that may be of interest from TL Run
It may just be the settings but the doctor will need to see the issue replicated - you might ask to get hooked up when on a walking / running machine to see what is really happening. See my story
"I had a similar problem where on starting a run the HR would jump to130 then 5 minutes later in would drop. It felt like everything went to lead. I had the doctor hook me up to a running machine (after 2 visits and adjustments) and fortunately the problem replicated. A clash of settings was the cause (I admit I had them adjust settings a number of times previously to allow the HR to get up to 160 not the just 130). Eventually it had something to do with how long the PM waited for my heart to kick in with its own ryhthm clashing with the next heart beat (the heart is beating faster at 160). The PM was reset to reduce this interval and also the sensitivity of how quickly the heart gets to higher rates was increased. The result is the PM stays high for the period of exercise and up around the 130-160 mark depending on how hard exercising. The one downside (which I have not gone back to get addressed because something else is likely to stuff up) is that my HR will pace high 130+ on little movement (e.g. going to the toilet at night) and when stressed. Not ideal and quite disconcerning but the ability to exercise is more important to me."
Good luck
Paul
You know you're wired when...
You have rhythm.
Member Quotes
A pacemaker completely solved my problem. In fact, it was implanted just 7 weeks ago and I ran a race today, placed first in my age group.
ugh
by Tracey_E - 2016-11-07 12:37:30
I hate when they write us off!!!! Paced and safe doesn't mean the settings are ideal, too many doctors don't differentiate between the two and are either too lazy or too uneducated to keep messing with the settings so we can be more active. Can you get another doctor? The PA may not be able to adjust settings. Do you ever see a rep from the manufacturer? My rep gets to the bottom of programming issues better than the doctor. Very few doctors do their own programming, they mostly know how to supervise someone else doing it.