A Painful Story

• by Arrhythmia Storyteller
• 2017-08-15 10:05:25
• Complications
• 1365 views
• 2 comments

Hello group.  My name is Matt and I am a new arrival here.  My wife had an ICD implanted in August 2015 following unsuccessful EP studies and a subsequent out-of-hospital cardiac arrest which I ressucitated her from (and implanted again in September 2015 and again in May 2016 because the first two procedures had been messed up). The second procedure left my wife in life-long chronic pain.

Arrhythmia-wise, she is now very stable (touch wood) but the complications from her treatment have ruined her life and there have been times when she has wished that she hadn't survived. Evemn now, she has on average two or three medical appointments every week to try and get her into a better place. As I have failed to get the hospital Trust to acknowledge their errors or (more importantly) to do anything to prevent them from happening to others, I have started to tell the story publicly. It can be found here: https://arrhythmiastory.com/

It is probably not a tale for recent implantees because it is, I hope, far from typical and it tells of many very negative experiences.

Together, we have been through quite a lot and perhaps our experience might be of value to others. I'm happy to try and help where I can.

Matt