Repositioning complete!

My CRT-D was repositioned last Wednesday.  I was admitted by noon the day before for pre-op testing.  My nerves were through the roof....a normal reaction for me.  I was admitted into the CCU, and surgery was changed from 830 am to 11 am and then, 6 am Wednesday morning, they came to get me for 8 am surgery!  I was so nervous I didn't get much sleep and was ready when they came to get me, and staff seemed unaware of the schedule change.  The surgery turned out to be very complicated with the device very deep into my lower left breast....one of the most difficult displacements he had seen. The surgeon did take biopsies and continues to be interested in why my heart is doing what it's doing.  I suffered a pneumothorax, but it was resolving satisfactorily.  Pain was extremely intense and not managed (not sure if I was in recovery or where I was) for some part of the first day, with morphine and extreme nausea for much of the 2 days.  I finally asked for a med change late in the day Thursday so they switched to tramadol and tylenol, which allowed me to transfer to step down unit about midnight and allowed my release late Friday afternoon instead of Saturday.  I believe the surgeon told me he saw no pocket and I was very lucky my wires had not been damaged.  The pain I had been enduring since the original implant is actually gone.....the pain is different!  I am wearing a sling 24/7 until I see the surgeon the 27th and he assured me not to worry about my shoulder.  He placed the device under the pectoral muscle and stitched it down well so I will be able to get back to activities such as backpacking, kayaking and swimming (although he groans about damage to wires for me since I am totally dependent ("thin flimsy wires covered with plastic").  The bruising is unimaginable, and it is half way down my waste, under my left arm, down my left side, and  extending across my chest into my right breast.  Surgeon told me I would have swelling and pain for about 6 months.

 It's over, I hope I never have to go through this again. 

Masks were not required at this hospital, but most staff wore masks as well as I.  When they allowed me out of bed for PT late Thursday, I apologized as my mask was not replaced after surgery.  They gladly got me one and they were also wearing masks. They told me up until a couple of weeks before the employees were NOT permitted to wear masks and changed to leaving mask wearing to the discretion of the employee.  There is no testing.  Fortunately staff was wearing masks that were attending to me.  I'm still dumbfounded.  It is a hosptial I've never been a patient of, is even further from my house, and someplace I don't plan to seek treatment from again.

For anybody referring to this post for researching repositoning, my case was extremely uncommonly complicated.  

 


3 Comments

Congratulations!

by Julros - 2022-12-20 01:35:02

Thank you for the update! That is surprising about masking, but then again, my state still mandates masking in health care settings. Good job advocating for a different med. I hesitated to get my device upgraded to an ICD last fall because of the pain, but so glad I did. The continuous ache that I felt with device #1 is gone, despite more inital pain after placing device #2. The difference between #1 and #2 is like night and day thanks to a skillful surgeon. 

Please keep us updated. 

Oh what relief it is behind you

by Gemita - 2022-12-20 05:59:42

Dear Islandgirl,

What a catalogue of events, but you got through it and I am so relieved for you. I am sorry to hear about the pneumothorax and I hope it will resolve quickly and that any pain can be well controlled.  Make sure you have sufficient meds at home over the holidays.  Hopefully now you can start to heal and to enjoy a better quality of life.  

Remember we are here over Christmas if you need to chat, but I hope you will be more comfortable from now on and that your heart will start to behave itself too, now wouldn't that be a nice present?

Your surgeon has been extremely thorough and I am sure he enjoyed the challenge and has learnt a lot from it.  I hope the biopsies give good reassuring news.  Do you know what specific info was requested.  I like to know about these things?

Bruising, ah yes, it can look horrific and be extensive as it drains and it can take time to resolve as I well remember after a cardiac procedure.  My bruising ran all the way down my leg to knee level, so they had to stop my anticoagulant for a week and kept me in hospital for a few days when I developed a pseudo aneurysm. 

I see your device has been placed under the pectoral muscle and stitched down well so you will be able to get back to activities such as backpacking, kayaking and swimming.  Something to dream about and plan over the holidays.

I send my very best wishes to you for a speedy recovery and sincerely hope the worst is now behind you xx

What an amazing journey!

by Lavender - 2022-12-20 16:23:25

I read your post twice. It's raw and honest but also hopeful and upbeat! Get better and get going again! You're an inspiration!

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