Most Recent Messages in General Posting

Post Message!

Pacemaker implant

Had my pacemaker implant 6 weeks ago and my check-up 2 weeks ago.  All was fine and requested to be seen again in one year's time.  However over the past few days I have been experiencing a dull ache from my pacemaker site across my chest into my right shoulder and up into my throat.  It is not a pain and not a tightness but just an ache.  Rang cardio rehab yesterday for advice and was told to call an ambulance as I needed an immediate ECG.  Paramedics arrived and...

Read More...

One year anniversary of CRT pacemaker

It is one year since I received a CRT -P pacemaker, due to LVSD caused by a dual lead pacemaker.This doesn’t happen often- I was just unlucky!My low ef has improved greatly and after a few spells of feeling unwell I have felt very well since September. Fingers crossed!

I would like to hear from other members with CRT- P pacemakers especially those who have had them for a number of years. If someone wanted to message me privately that would be all right too.

I would also like...

Read More...

Rate Response

Hello,  I was wondering if someone could explain the Rate Response workings to me?  Brief history, pacemaker implanted 2019 due to Type two heart block.  First symptoms were when I walked for excercise my heart rate would not increase corrrectly.   Even after the pacemaker was implanted still had a problem with heart rate increase during excercise, however the doctor I was seeing would not turn on Rate Response said I did not need it on.    Finally chan...

Read More...

A gentle reminder to be vigilant

As a caring member of this Club, I would like to gently remind everyone to perhaps be careful when answering new posts.  A few isolated messages that find their way on to the Pacemaker Club “Most Recent Messages” page, may not always be what they might first appear to be.  From my own observation and from messages received from well respected members, evidence of troll like activity is still occasionally occurring and a few posts that appear may be of questionable a...

Read More...

Barostim?

Just curious if anyone else has been told about, offered or received the new barostim devices?  My center is ramping up to receive their first shipment and talking to possible first candidates (apparently doc thinks I might be one).  I know this different type of "pacing" if you can truly call it that is really new to market and am wondering what everyone's thoughts are.  If you need a link to the website just holler.  Otherwise google barostim and go to the...

Read More...

Watchman Device

I am wondering if anyone here has had the Watchman implanted, and if so how did it go? Developed Afib and flutter after sepsis and endocditis however some docs feel I won't meet criteria for implant due to valvular disease (I have mitral valve implant). FDA covers non valvular only at this time. I am not a candidate for blood thinners due to history of bleeds so there is that issue. 

Did anyone come across this issue of have valve disorders and still get the implant? 

<...

Read More...

Apple Watch ECG/AirPod issues

I have noticed that since my PM implant on 04/01/21 I can no longer get an ECG on my Apple Watch 5. I was able to do this before and wonder if it is because with my cardiomyopathy I am pacing at 99%.  I also am having an issue with my AirPods. After about 15 seconds my left AirPod stops working. I have verified that they are charged.  I could find nothing about this on the Apple website. 
 

Maybe it's just coincidence but just curious 🙂

Read More...

First outing alone

Hello again, I seem to be on here every other day asking advice . I felt brave   enough to attempt a bus ride to local shops as a step forward and gain confidence. All ok for around 30 minutes then I was very conscious of my heart pounding hard and felt ridiculously hot and Clammy ..... no pain ,no dizziness but I felt quite vulnerable . Just wondering at what point do I check this out the ,number I've been given is contactable Mon to Friday, Drs are not open and...

Read More...

Lightheadedness

I'm 7 months out and having periods of lightheadedness. My BP is always around 114/70. Tried to do a 2 mile hike yesterday and once I got started, my pulse got up to 115. Varied between 115-90. I am set at 60 bpm. I try to keep from being dehydrated, but the fluids don't seem to stay with me. Is there any secret to staying hydrated? I called the device clinic to see if they could tweak my adjustments and they said there wasn't one for lightheadedness. Told me to go back to the EP...

Read More...

Fast heart beats

Two weeks in from having Pacemaker .past couple of days I have been experiencing being very conscious of my heart beating quite fast this settles  after a short time then   reoccurs . Unsure if it's because I'm anxious about the Pacemaker working properly or is this what is suppose to happen when heart beat goes too slow and Pacemaker kicks in.  Wondering if anyone else has this. Trying to stay positive and take it all in my stride .... but  emotions are takin...

Read More...

Alternate ectopics with paced beat

For the past few days I have been getting long periods of  alternating ectopic and paced beat.  As I have had an AV node ablation I am paced 100%, and my rate is set at 80. But when these ectopics start it means that of the 80 bpm I am only getting 40 effectual ones as the ectopics do not pump blood properly. It is very stressful as I feel quite breathless and cannot do anything. The pacing clinic have looked at a download and said there is nothing they can do and my heart...

Read More...

The longest working pacemaker

The longest working pacemaker (present day) belongs to Randy Kasberg (USA) which has been working for 36 years and 337 days, after it was fitted on 30 September 1977 in Gainsville, Florida, USA, as verified on 2 September 2014.Sep 2, 2014

Read More...

Newbie

Hi am a Newbie as only had my PM 1 week. Advised due to SS Sydrome .        
After I 'crashed' on a short training run 1 month ago. Also as well as pausing 3 seconds at 40 bpm they identified  fibrillation at the top end.   Cardiologist strongly recommended I start taking Blood Thinning drugs.  As I am not on any drugs I am hoping there might be other more 'natural methods' which might be an alternative to drugs...

Read More...

Aortic stenosis a pacemaker.

Sorry this is long...I went  in with symptoms of heart problems and get diagnosised with bradycardia and murmur. I received a 2 lead pacemaker then 2 months later a 3 lead in 2012. I have had random symptoms a pacemaker checks, asked questions and now just had generator replaced 2021. My murmur has never been addressed. I find out at that time just pre surgery that the 2 lead had put me into congestive heart failure..the 3 lead took me out of CHF and that 1 year prior ago  I was mod...

Read More...

Insurance

Hello all

i dont know if this is the right spot to post this question but here it is.

who has insurance that pays every single medical bill 100% including medince 

even if experimental procedure?   So that you inever see a bill for anything.

 i know we perhaps think its a dream but my gut tells me its out there.

who  or what company offers it.

 

signed the dreamer

mike

Read More...

Adjustable beds with message

I was hoping someone here has an adjustable bed with message. Husband decided to buy one he has a bad back, but I have a CRT-D and not sure if I can sleep in this bed and use the message , I don't need to use the message just want to be able to sleep in it. Thanks

Read More...

Medtronic Carelink Monitor

Last August I was given a Medtronic Carelink monitor and contacted by the hospital to carry out a manual download.  I have not heard any thing since then and it now sits unplugged in its box.  How do I know when to make another download ? TIA 

Read More...

Oops

I am sure that almost everyone here has had an experience similar to mine today--but it has caused me some slight concern that I know you can address.

At the grocery store, my favorite iced tea (12 pack of cans) was for some reason stocked only on the top shelf. I reached up--I'm 3 months post-implant, but I still reached mainly with my right arm, using my left to support the box on the way down. The box had gained some momentum & landed instead precisely on my pacemaker! I...

Read More...

Air Purifier

Hi,

Does anyone know if Air Purifiers interfere with pacemakers.  I have just bought a Dyson Cool Me purifier, and the first thing on the leaflet is a warning that both the device and the remote contain magnets.  Obviously I am not going to put the remote in my pocket, but will this affect the pacemaker.  They do warn you not to put credit cards on top of th eunit or the remote, but don't say how strong the magnets are..

I do get a bit jumpy when new gadgets are...

Read More...

How to manage

Hello everybody

Just a chit-chat post, but I could have selected "coping"...

I had my CRT-D installed 2 months ago. (My Chf was diagnosed in November 2020)

Healing went fine, scar is ok. No bruises, no problems... I have a control échographie end of may, and I'll see my cardiologist beginning of June.

I still find it a little bit frustrating that I need to wait so long, but, it is what it is...

I may have mentionned that I live in France. Luc...

Read More...

You know you're wired when...

Trade secrets can be smuggled inside your device.

Member Quotes

I am just grateful to God that I lived long enough to have my ICD put in. So many people are not as lucky as us; even though we sometimes don't feel lucky.