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A 4 week Journey through Anxiety and Insomnia

This is my second post on here, but I do love reading  all your posts, they are so helpful.
My last post was following my first op for a PM on 5th April. I had a very uncomfortable 2 weeks, I was on Propranolol and experienced jumpy heartbeats, which prevented me from sleeping. Unfortunately, insomnia is now a continued problem for me.


I also experienced severe high Blood Pressure,  182 over74 at one point and worse, due I am sure to anxiety and lack of sleep.s...

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Genetics

My sister is having surgery to remove a blood clot from her heart today. She has had multiple clots, both venous and arterial. She has a few in her lungs, the main one has completely blocked off the lower portion of her lung, and it has basically died. She also had an 8cm one in her brachial artery that had to be removed in January. She's had every clotting test done, and still no answers. I've also had two blood clots that had to be removed after injuries.

Maybe I'm graspin...

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Svt And alcohol Adviced

Hi if you follow my post you know once in a while I say 2-3 per month I get this episodes of svt last few seconds I jotice that when I drink coffee hours later it happens..so my Question is this I MENTIONED TO DR SPECIALIST OF ELECTRIC.  I WANT DRINK BEER 🍻 GE SAID 1 ITS FINE BUT DONT OVER DOIT LIKE GETTING DRUNK HE SAY I MIGHT END UP IN E.R ??? WHY IS HE JUST SCARING ME OR HOW BEER WILL GET SVT IS IT DANGEROUS TO HAVE THOSE IF I DRINK ??

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Medtronic BeConnected

Has anyone any experience of using this service in the UK?

I'm after information on what the MyCareLink monitor is capable of monitoring.

I'm particulaly interested in whether or not it records and reports ectopics.

The only time I've had any information on recorded events was AF and that was at a clinic, not via monitor. I'm guessing that the monitor would report the same.

Just thought I'd ask before calling them.

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Pacing

I'm heading into my 5th month since implantation for. 3rd degree HB. Due to bradycardia. My pace is running 99.7% of the time to keep my rate at 60bpm. I assume itts what it's intended for, but freak a little as to why?  I exercise everyday and it always seems to be a struggle to get my HR up also. 

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Biotronik Enitra

I found this forum after looking for answers.

I had an Enitra 8 DR-T fitted 15 months ago and given an appointment for a year later to download the stored information. 

Doing my own research I found that there is a home monitoring device that wasn't offered to me by my NHS hospital. I have since discovered that the device is available in some NHS Trusts and find this unacceptable but not unexpected. 

Does NICE have any guidance on the use of home monitoring and...

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Bardy monitor results

I have gotten the results from my 2 week Bardy monitor as well as my EP's interpretation of it. He feels that the main cause of my continued symptoms is inappropriate sinus tachycardia. My average heart rate was 89 bpm ((while on a beta blocker)), consistently over 100 during daytime hours. I also had 2 episodes of fast atrial tachycardia with an average of 184 but highest of 205, but only 9 beats long. As well as "symptomatic trigeminal PVCs" and 2 episodes of "ectopic atr...

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PM ID Card for Wallet App in Smart Phone

I'm new here. Just got a Medtronic Azure dual chamber PM on April 21, 2023. All went well, although I did need cardioversion during the implantation procedure due to an Afib event. Otherwise, no complications. I had a 7-day check-up yesterday in the Cardiac Device Clinic at my local medical center, and all looked good. I'll go again in 3 months.

I have the Medtronic My Care Link app installed on my iPhone, so my PM is automatically monitored on a regular basis via Bluetooth...

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Interesting item

I found a news item in the Scottish news about the first digital pacemaker being implanted in Scotland.

The gentleman who had the pacemaker fitted was the third in the country as whole to have a digital PM.

It was in 2003.

Here's a link to the item

http://news.bbc.co.uk/1/hi/scotland/3089587.stm 

I found another item about a girl who had a PM fitted at a few days old. Instead of the minor op w...

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5 weeks in....

... thanks to all who talked me down the initial few weeks. That was, without a doubt, the scariest time of my life, and I was feeling VERY alone - so THANK YOU to everyone who replied and helped me through this. 
One of the turning points for me was about 1 and half weeks in and I did too much and I pulled my incision a bit. I realised then, and with your words, I **NEED** to take it easy and give myself the grace and time to HEAL. 

So, yah - I'm 5 weeks in, and...

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Svt ? Or something else

So just to recap , i have been diagnosed with having a difficult to treat Svt . Cant do ablation..so my question is this . Before I use to have to episodes and felt like flutter like weird electrical beats all over place ..but recently and I worry..I get this beats all over place but it feels like beats are slowing down rapidly! Last few seconds but it scares me I drink metropolol, and cartia ..this sensation doesn't happen often just rarely is it SVT ? 

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new poll

  this new poll "What medicines do you take for your health."  does not ask about supplements? which of course i take.   Only prescriptions  which i do not use at the moment.  Can not answer .

new to pace

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Home monitoring system

Hi, I recently received a home monitoring system from my cardiologist to connect to my dual-chamber Biotronik pacemaker. I don't know if it's a coincidence, but I happen to wake up at 1:20 am as I can feel the rhythm of my pacemaker change. It feels abnormal, like PACs but not exactly. And it lasts for about 30 seconds to a minute. I figured it was my pacemaker getting checked because it felt similar to when I get it interrogated and it happens at the same time.

Does anyone...

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High bp

Went to my family dr today put me back on bp meds hopefully this will help I appreciate all your comments 

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High bp

I had a pacemaker implanted 5 days ago and dr took me off bp meds my bp is running around 165/111 and I'm very irritable Is this normal?

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Info to put on medical ID bracelet

I have a rare congenital heart condition and recently got my first pacemaker (right side). I have significantly distinct heart anatomy. In an emergency, it might be important for medical staff to be in communication with my ACHD team, which is located at one of the many local hospitals (I'm in a large city). Most cardiologists are not very familiar with my heart condition, and my ACHD team is specialized.

I'm ordering my first medical alert bracelet and am deciding what to put o...

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Pacemaker left or right?

Hello, I'm a professional violinist and will have my pacemaker implanted next week. 

I'm very concerned about where to put it, right or left. Does it harm for playing? Can I use the bow intensively when implanted on the right side (what I preferred) or is it better left?

 

Thanks for the quick answer as I see my doctor tomorrow at 8 am. 

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Pulse rate monitor

Hello

I've been on a PM for 18-years with no trouble until recently.

Ectopics have started and are interferring with normal life.

The problem is that all I get from the physiologists is "PM is working fine, 70 bpm"

What I feel at my wrist pulse is quite different and is more like 30 to 40 bpm, blood pressure is low and I don't feel right.

I've got to find a way of bringing this to their attention and break the hurdle of "PM is fine"...

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Insurance

What insurance do y'all get because the one I got sucks and I'm paying so much I just wanna know some suggestions and things to look for next time I get insurance thanks

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What happens if atrial lead fails?

A hypothetical question....I am pacemaker dependant due to heart block and have a dual lead pacemaker fitted. The pacemaker is driving my ventricles based on my hearts natural pacemaker picked up in the right atria. If the atrial lead was to fail would it be gameover or would the remaining lead continue to pace the ventricles but out of synch with the atiria? As I said, only hypothetical but something I was thinking about earlier today.

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You know you're wired when...

You have a dymo-powered bike.

Member Quotes

The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.