To those with CLS switched on...

Hi!

I was wondering, if you have the same problem as I do, namely that after every pacemaker interrogation the rate response seems to forget everything it has learned so far, and just starts from zero again? That means that for the first couple of days after a check-up, the CLS reacts very sensitively, making my heart race up to the max. sensor rate whenever I just walk a bit. Auto optimization does work, but it only adjusts every 24h, so it takes a few days to get the heart rate back down to normal range for daily life activities.

I asked the EP yesterday, and he said that shouldn't happen, but in fact it does. I walked in for the interrogation yesterday with a heart rate of 80 or 90, and when I walked out I was running at 160 after a minute of walking or so. This also happened after revision surgery in March, and after an interrogation in February. Haven't had that problem with my prior pacemakers.

Any input would be appreciated! I'm also going to e-mail someone from Biotronik, but I thought I'd ask here, too. Thanks!

Inga

4 Comments

Not Me

by NiceNiecey - 2014-05-01 11:05:29

At the beginning (4 months ago) it was sort of like but I was very sensitive to every little thing. Recently, however, (just got adjusted/seen yesterday) that has not been the case.

Good luck. Let us know what you learn.
Niecey

Better today

by golden_snitch - 2014-05-02 10:05:42

Thanks, Niecey!
But your Medtronic pacemaker doesn't have a CLS rate response sensor, it only has an accelerometer.

Anyways, I had the last interrogation Wednesday around noon, and then went into tachycardia up to 160bpm (upper CLS rate) with every little walk etc. the rest of Wednesday, and the whole day yesterday. BUT today I'm back at my 80-90 for daily life activities, yay! So, at least this time it didn't take several days to adjust again.

Inga

Thanks, Selwyn!

by golden_snitch - 2014-05-03 05:05:36

I actually read that article - and all other studies published about CLS before Jan. 2014 - before I made the decision to get the Biotronik Evia with CLS. It was the first study on CLS in a large patient group, and it sounded very promising.

The problem I experienced, with the racing heart rate with minimal exertion after every interrogation, also happend when they did not change any settings. So, that's even more strange. But I'm going to figure this out, hope Biotronik replies soon.

Thanks again for your research!

Inga

CLS

by Selwyn - 2014-05-03 12:05:53

This may help:
http://europace.oxfordjournals.org/content/early/2012/03/28/europace.eus062.full

At least it looked at 706 people.

They really should not fiddle with the settings once you are happy.

I have no personal experience

It would be interesting to see what Biotronik have to say!

You know you're wired when...

You run like the bionic man.

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