burning sensation after pacemaker operation

Hello,

I hope someone can help my mother who is in her 80’s. She had a pacemaker operation over 3 months ago. Two days later, a burning sensation started in her back area, and has been there day and night ever since. This causes her enormous stress and pain, making it very difficult for her to relax and sleep. She has seen over a dozen specialists - including several cardiologists, neurologist, immunologist, etc. – all of who say two things: there’s nothing wrong with the pacemaker; we don’t know what is causing the burning sensation.

Is anyone familiar with this burning sensation (in the back area, not by the heart) after a pacemaker sensation? As her loving son, I would really be grateful for any contribution on this topic. Even if you don’t have a solution, it would be reassuring to know that my mum is not the only one suffering this condition. Please do send your news.

Much appreciated,
James

3 Comments

Gastroenterologist?

by cabbie - 2014-10-17 08:10:08

Hi James. Poor Mum. I haven't been able to sleep since my implant in August either. It is such an inconvenience/misery.

Could the burning sensation be from acid reflux? Have you seen a GI specialist? Even if they can't pinpoint exact cause, I hope at least one specialist has given her some medication and/or advice to relieve it.

My cardiologist is almost dismissive of my insomnia but it's really a big deal to me. Months of sleeplessness!

Hope this helps

Nerve pain

by shal - 2014-10-26 09:10:18

Hi James I suffered the burning pain and referred pain as it's known as , namely not at the pm site but in the area surrounding it. It was diagnosed as nerve pain ...with the nerves possibly hitting the scar tissue or having been pinched. I was put on a course of gabapenten. After 2 to 3 months it died down and went away. Perhaps go to a pain specialist and discuss this? All the best shal

thanks for your feedback

by saunders22 - 2014-10-26 10:10:52

Hello Cabbie and Shal, just a quick message to thank you both for making the effort to share your experiences. I've passed those messages onto my mum, who was happy to learn that she was not alone with this continuing condition. I encourage others to share their experiences; it doesn't cost anything and there's the reward and satisfaction that you can make my ageing mum feel better. I appreciate that, James

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At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!