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For those that have followed my infinately boring posts I'm looking for some more info.

Have used the serch mode but would still like to hear from anyone having AV node ablation, preferable not for Afib but any help is always welcome, how long they took to get back to "normal" and overall effectiveness.

When I saw the specialist last Tuesday he informed me that he had only done about 10 such ablations for my condition, and he is older than me lol!.

Going to take me a wee while to get used to the new layout, very smart. ???how do you get spell check, 'cause mine is awful.

Cheers Jane xx

 

3 Comments

AV-node ablation

by golden_snitch - 2016-06-05 12:43:32

Hi Jane!

I had an AV-node ablation back in fall 2012, it was my 8th ablation. Have had permanent sinus node reentry tachycardia, AVNRT, several ectopic atrial tachys, atrial flutter and then in the end some kind of accelerated junctional/idioventricular rhythm causing lots of AV-dissociation (ventricles activated earlier than atria) also because of a retrograde VA-conduction. Also had pacemaker mediated tachycardia because of this.

Tried to get this junctional rhythm under control for about four years with all drugs that are currently on the market. They all failed somehow. Then tried a modification of the AV-node, but that failed, too. So, in the end after giving this lots and lots of thought, my EP and I decided that an AV-node ablation would be the way to go.

Haven't had any problems with retrograde conduction, AV-dissociation or pacemaker-mediated tachycardia ever since the ablation. I'm paced about 98% in the atria and, of course, 100% in the ventricles. No more antiarrhythmic drugs since the ablation.

I think, at the moment I'm kind of exceeding expectations. We had hoped that the ablation would at least make me feel a little better, but we had not expected that I'd be as stable as I am now. This is mostly because I have had so many atrial tachys in the past, that we expected something new might pop up, and that I might end up being paced in the ventricles only (VVIR) which could then cause some symptoms.

We also know that, if I should have paroxysmal and relatively slow atrial tachy again, the pacemaker will not automatically switch modes to ventricular pacing only. I have an upper sensor rate of 160, and you cannot program a mode switch below that. So, if this ever happens, we need to figure out what to do about it.

But the retrograde conduction and the accelerated junctional/idioventricular rhythm are fixed at the moment, and that is great. I feel 100% better than before the AV-node ablation and I'm glad that I don't have to take any meds any longer.

Good luck!

Inga

Thanks so much..

by Jane S - 2016-06-05 13:40:42

Through out my ups and downs, it is the like's of yourself that has given me the confidence to belive that things can get better.

It was hinted at that I will be a lot better butthey can not say for sure if there is anything else going on. have had some AT and maybe Aflutter/fib but that has know been disputed.

Love your more specific comments keep up the good work - being inspirational.

Thanks

Jane x

Sorry AngrySparrow..

by Jane S - 2016-06-07 16:04:37

My bad typing again, the Consultant is vey experienced, but it is my particular set of problems that he was speaking about.

I'm not as complicated as Golden_snitch but the more i've read over some of my documents the more I realise that I've been a more difficult case.

Yes I feel apprehensive, expected to feel so much better with the PM and 14months later still having significant problems,, but trying to stay positive.

Jx

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