Positive ANA test

Hi,

I have congenital complete heart block and have been paced since 1998.  I am 39 years old, on my 3rd pacemaker, and lead a very active, healthy lifestyle.  Last week I was diagnosed with Reynaud's Syndrome, and today I found out that the results of my ANA blood test were positive.  My PCP has referred me to a rheumatologist.  The rheumatologist will be in the same large university health system as my EP and cardiologist.

 Are there any other adults with CCHB on this forum who have been diagnosed with lupus or connective tissue disorders?  Neither of these conditions run in my family, and I have no symptoms other than Reynaud's and the positive ANA test.

Thank you!


3 Comments

Positive ANA

by Chapter - 2020-10-31 01:06:54

Hi,

I am 66 years old, was diagnosed with Lupus when I was 55 when I was very obviously symptomatic, after everyone telling me I was to old to get Lupus.  Problem is Lupus can be around for a long time before it is recognized and diagnosed, in the meantime you just carry on.
My issues with my heart didn't show themselves until 3 years ago, now the Lupus symptoms have backed off and my appointments are with Cardiologiists instead of Rheumatologist.

If you are not symptomatic, aside from Reynaud, don't panic about the ANA, it is only one part of diagnosis.  Don't forget to take someone with you to appointment to hear the things you don't.

Chapter 

 

 

Positive ANA test - anti nuclear antibody test to help diagnose auto immune disorders

by Gemita - 2020-10-31 07:08:16

Hello Barnet38,

I am reading you lead a very active, healthy lifestyle which tells me that you are currently quite well?  A very good sign.

A positive ANA test may not be significant and needs to be assessed along with other test results to provide a full diagnosis and a Rheumatologist will soon tell you what this all means for you, so please try not to worry.  

A Rheumatologist can carry out a whole range of additional specialist tests to determine whether you have primary Raynaud’s (most common form and can be very mild) or secondary Raynaud’s which is caused by an underlying problem (like a connective tissue disease, arterial problems which might be more serious).  Remember too that certain meds can cause cold fingers, toes, like for instance beta blockers, and any injuries to the hands and feet may also trigger sudden coldness.

I agree with Chapter, your test results so far may not indicate a great deal.  You need a full work up for all other diseases to establish a good, solid diagnosis.

I have an inherited condition known as Ehlers Danlos Syndrome that affects connective tissue and I can also suffer badly from cold extremities.  I have had numerous positive ANA test results which seemed to point to Lupus, to Raynaud’s, but a specialist Rheumatologist eventually diagnosed my condition by physical examination in 2012.  You need that examination too to get to the bottom of your problems.  I do wish you well

 

Thank you!

by barnet38 - 2020-10-31 20:19:53

Chapter- Thank you for sharing your experience!  I am trying not to worry, and will be taking my husband to the appointment.

Gemita - Yes, I am currently doing very well. I exercise 5+ days a week (spinning and strength training), am working full time, and normally spend a lot of time outdoors year-round.  The Reynaud's popped up out of nowhere.  I thought it may have been caused by an injury to that finger that happened in the spring, so I was surprised by the positive ANA test.  I do not take any medications, other than OTC meds for seasonal allergies.

Thank you for sharing more information about what I can expect from my visit with the rheumatologist.  I'm sorry to hear that you are also suffering from cold extremities, but am glad you were able to get a diagnosis.  I hope the doctor has been able to help you manage your symptoms!

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