Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of whether or not they experienced post op pain, are welcome to participate, since this will help to provide a balanced, unbiased survey result.  The survey should take no more than 5 minutes to complete.  The survey data will be collected by a trusted member of the Pacemaker Club who has experience in this area and the results will be analysed carefully and reported as soon as possible.

What is the purpose of the survey and what are we going to do with the results? 

If we can get sufficient numbers to participate in the survey to make it a worthwhile study, it is our aim to try to get the results published in a well respected cardiology journal, so that these results are available to the medical profession.  Any paper accepted would have an acknowledgement to the Pacemaker Club.  Results of our survey will help us to better understand and acknowledge the complex range of pain and other symptoms many of us may experience post implant and how we might best manage these.  This will help to improve patient outcomes now and in the future, particularly since most of us will expect to go through several battery/lead changes in our lifetime. 

I will continue to “re-post” this message from time to time to try to reach as many members as possible.  I apologise in advance for my persistent, unwelcome intrusion on your “Most Recent Messages page” and I thank you for all your patience and help with this.

The survey link is:-

https://s.surveyplanet.com/bS5tNLhNq

Gemita

3 Comments

Update

by Gemita - 2021-12-09 09:01:21

At the last count, we had 149 responses to our Survey, so steadily moving up.  I will continue to post the Survey link until the end of December 2021 and then leave you all in peace

Posted to a couple of Facebook support groups.

by DouglasRachac - 2021-12-14 17:21:31

I moderate a few device related Facebook support groups.  I've posted this to both the Pacemaker Support Group (8,500 members), and the Living with an ICD Support Group (11,000 members).  Hopefully you get a few additional results.

You are very kind

by Gemita - 2021-12-14 18:10:19

Douglas, thank you so much for your help. Would be wonderful if we could boost those numbers.  We were aiming for 300 at the start, so even if we reached around 200, would be a good number to work with.  Thank you again and I will post the results and any publication on both Facebook groups

You know you're wired when...

You name your daughter “Synchronicity”.

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