why do i continue to check this site

My reasons for checking in

by Gemita - 2024-02-25 05:24:51

New to Pace, I check this site because I want to keep learning about my heart condition and what might “fuel” my heart rhythm disturbances.  I am particularly interested in pacemaker settings and what settings do.  I am interested in learning how my pacemaker works (a vast subject) and how a pacemaker “could” on occasions contribute in some way to my abnormal heart rhythms or could be better adjusted to help with this.

When a member posts about their experience, good or bad and we read some of the responses, we may learn something new, something useful to ask our doctors about our own situation.  When a member shares questions, answers from their clinicians, shares results from their monitoring, investigations or from a procedure, I find this immensely valuable, especially if my heart condition requires a similar intervention at some stage in the future.  

Last but not least I continue to check this site to see if I am able to offer support to other members in whatever way I can.   I will never tire of trying to help members in distress, even if I am only able to offer a warm welcome.  I have met many good people here who have taught me a great deal about myself, how to interact with others, how to listen, how to respond, how to try to be a better member.  Above all this unique Club is helping me to have a meaningful conversation with my doctors about an extremely difficult, technical subject:   a pacemaker and a heart rhythm problem.

Why wouldn't i continue to check this site?

checking this site

by new to pace.... - 2024-02-25 05:44:31

Thank you  Gemita  I agree with your comments. 

new to pace 

Why?

by piglet22 - 2024-02-25 05:45:45

Gemita sums it up.

For as long as we have our devices, it's somewhere to share experiences and ask questions.

What are your interests, hobbies, areas of expertise? These can interact with your device

I'm conscious of my device throughout the day and I know I would be in a sorry state without it.

The real value of checking in as far as I'm concerned is there's more information here than I ever get from the medics.

It's also clear that there's a wealth of knowledge here besides just cardiac devices.

Anyone interested in old sewing machines? How do I hold a round die nut in a vice?

I dip into the news every day, the weather.

Why not pacemakers?

We are all unique

by Gemita - 2024-02-25 05:53:11

New to Pace, you are definitely unusual in that you do not take any prescribed medication for your condition and yet against all odds, you continue to do well.  We need more trials and results from trials about whether some patients actually do better "by leaving well alone"?  

I am learning a great deal from you too.  You are our guinea pig for leaving well alone.  Long may you continue in this role.  

Great topic

by Good Dog - 2024-02-25 09:49:57

I do not think that there is anything more rewarding than reaching-out to help others. Even if it is no more than moral support. This forum provides those rewards. However, relative to so many other folks on this site, I have minimal technical knowledge. That certainly limits to some extent my ability to help others. That being said; over the years I have learned so much here from others experiences and the responses they elicit. I feel that it has helped me improve the quality of my own care. Here, I have learned the importance of and developed my ability to advocate for my own care. For me, those are the most important reasons that I continue to come back again and again.