Most Recent Messages in General Posting

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KNOWLEDGE

ElectricFrank is really knowlegeable and claims that he understands the electronics in his pacemaker and spends a lot of time studying medical documents. I also have noticed that some doctors do not like it if you educate yourself and are able to make informed decisions about what and what not should be done. If I had not made a study of electrophysiology , I would not be in the good health that I now find myself in. Hospitals often "use" patients to speak to worried patients about their concern...

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Treasure hunting with Metal Detector...

I wanted to know if anyone has a metal detector for treasure hunting. I'm getting a metal detector tomorrow for Father's Day. I'm so excited, but, I just wanted to know if it's okay to use with a pacemaker. If you have any information to share with me, I would be happy to hear it. May you all your blessings come to pass.
What a treasure it was to find this web site. I'm happy to report that I'm hanging in there and things are looking up. I hope everyone finds a peace of treasure in their h...

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PMclub site quotes

Hello again. I'm sure you all are aware of my quote mission, and was hoping it would be okay if I created section in my book for those quirky You're Wired When quotes as long as I gave the site credit. Thanks a bunch!

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what do i do...

if i hate my doctor's assistant?

michael, the assistant to my CEP, is the biggest jerk i have ever had the displeasure of meeting. he is condescending and patronizing, disorganized and disrespectful. every time i speak to him (which has only been three times) he puts on these airs that are supposed to make me feel like the biggest moron to walk the planet. i question him about something, and he gets offended and begins speaking to me as though i'm two.

thing is, i'm pretty...

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World Heart Rhythm Day 2008

Arrhythmia Alliance, in partnership with the International Cardiac Pacing & Electrophysiology Society, is pleased to announce that the forthcoming Arrhythmia Awareness Week 2008 will be held from 9th-15th June, with World Heart Rhythm Awareness Day falling on 13th June.

Organisations, such as Pacemaker Club, and individuals from across the globe help raise awareness of heart rhythm disorders and sudden cardiac death.

To learn more visit www.aaaw.org

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Big day tomorrow!!!

Hey all! The day is almost here... TOMORROW I GRADUATE MIDDLE SCHOOL!!!!!!!!!!!!!!!!!!!!! Only 4 more years of torture and then I can go to MED SCHOOL!!!!!!!!!!

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moved and looking for a new Dr.

I just moved from Oklahom to Charlotte, NC and have been very hesitant to deciding on a new Dr to manage my pacemaker. I am only 43 and have had my pacemaker for almost 2 years. I went in for an ablation and my AV node was inadvertently ablated requiring a pacemaker. Then my lung was punctured when they put in the pacemaker. 2 weeks later I developed pericarditis.

To make matters worse, my doctor wasn't really interested in helping me return to my active lifestyle after it was all...

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physiotherapy

can anyone tell me if they have had any physiotherapy treatments with a pm in place. i am suffering strain and tension in my neck and shoulders which is causing severe pain now and getting worse. ive been to physio in the past for same problem but they said they cant do any of the treatments because of the pm. ive had acupuncture three times the first two sessions helped a lot but the latest session did nothing. a course of steroid and anti inflammatories did nothing either. i am having my pm re...

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I am a TRASYLOL victim!

(If you haven't seen it, first click on, or c&p the link below to view the "60 Minutes" piece from February 2008 exposing the dangers and destruction caused by the now FDA-pulled surgical drug, TRASYLOL.)

http://tinyurl.com/6ydt3w

TRASYLOL, a drug made by BAYER AG, has been off the market for less than a year. It was used solely during open heart surgery to control bleeding. It cost $1,200~$1,500 a dose, vs its strongest competitor that cost just $50 a dose and was equa...

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Uggh, summer!

Hello again. K, I have a question for the drivers out there: do you have to have a thing on your license saying that you have a PM or ICD? Just wondering. Oh my gosh!!! I went on a band trip to Splash Down on Saturday and got burnt sooo bad despite the fact I lathered on sun block 3 friggn times!!! UGGG!

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hello cathy

everyone from the east the west ontario and quebec all have their differences in politics but not enough to cause this much biiterness. we did get the electric storm heading up towards toronto to-night. lots of lightning. take care jess

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Adventure!

Hello everyone,
I was quite taken aback when I received my pacemaker in Feb. of 2005. I kept thinking that my adventurous lifestyle had come to an end. So for the last few years I have slowly begun to do things I love again. Tonight I am in a hotel (very nice) in Boise, Idaho, USA. My hubby and I have just spent the last 4 days in the beautiful mountains here. We have been hiking and riding 4-wheelers all over the mountains! We have been having a blast. It has been the best time I have...

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Acquired or Congenital LQTS? Did We Cause Our Heart Issues??!

Hi Group,

I'm posting this on the general board as I'm not sure where else is more appropriate. I just got my ICD a few days ago after a week of testing in the hospital (was a nightmare) and the Dr.'s, though they STILL don't know for sure, seem to think I have Long QT Syndrome due to the very long QT intervals on my EKG's.

I've been looking up anything and everything I can on this condition and understand that there is acquired and congenital LQTS. No one in my family h...

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OPEN MRI

Hello,
I was wondering if a person with a pacemaker can go to an open MRI ?

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hi

my picture is a picture of my grandaughter jessica and my husband john. it was supposed to be beauford my cat. o whoa is me with my techinal ability. jessie

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Tomorrow is the day!

Well, tomorrow I go in for gallbladder surgery at 10a. Surgery is at 12.20p. I just want to thank all of you who have chimed in to my previous post and helped to put me at ease. I'll give you an update when I get home and am feeling up to it. I can't wait to eat anything without feeling bad! I'm more nervous for my pm than for the surgery itself. The anaesthesiologist will watch my pm, but it will be "turned off" via the magnent so he has control over my heart during the surgery. I just w...

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Naming Your Device

So I've been reading alot of the posts and it seems that many folks have names for their devices! I wondered how common this is among PM/ICD club members. I would love to hear from you all as to whether you do or don't have a name and if so what is it if you don't mind sharing.

I received my ICD on Monday and I have not named it but the thought had occured to me. The nurses had even asked me about it and that was the first I had heard of this:-)

Thanks for humoring me-...

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low back pain

greetings all
it has now been 6 months since my medtronic addr01 pacemaker implant for sick sinus syndrome and mostly all is well. it has made a positive difference in many areas. for the last two months though, i have been getting a progressive low back stiffness/pain that is very hard to relieve. tried NSAIDS and a few muscle relaxers via the MD but no relief. anyone else with this symptom, i doubt it is PM related but no other reason that i can think of.
thanks:

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People not to offend

The pacemaker club with quickie 1 liners, they will censor you.

DO NOT OFFEND THE FOLLOWING PEOPLE:(

The Primary Doctor who writes your prescriptions.
The Pharmacy who fills your prescriptions.
Your spouse who picks up your prescritions.
Your spouse who gives you your prescritions.
The implant representative who checks your implant settings.
The Electrophysiologist who sets the final programming.

JUST KIDDING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!...

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What's Going On?

I posted last week about having my second ablation. Well, all went well, and I am home from the hospital.
I am having some strange new symptoms now that I have never experianced before. They don't seem to be heart related, but I was wondering if any of you might know what is going on.
Since the procedure on Tuesday, I have gained 15 pounds! I am also having difficulty urinating...it seems to take a really long time and strain to get the flow started.
Anyone know what might be go...

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You know you're wired when...

You’re officially battery-operated.

Member Quotes

In life we have to consider what is more important, the loss of the vanity or the gain of the life.