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New Here - Need Your Advice, Please

Hi,

I’m new to this forum and could use some experienced advice. Here’s my story:

I was diagnosed with advanced prostate cancer 5-years ago (stage 4). The cancer had spread to one area outside the prostate – the T8 vertebra.  Went through chemo, radiation and surgery as well as 5-years of hormone therapy (Lupron). I’m in remission now and not taking any cancer medications. ;)

The doctors...

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New

Hi Alex here 28 Y/O Female 

I just got done with a month in a half hospital stay. I went into the hospital with Tachycardia 3 days into stay I went into long QT Torsades De Pointes Ventricular Tachycardia. I was then moved to the ICU for stabilization. When in the hospital i contracted COVID and therefore had to wait for a negative COVID test before a pacemaker. I was moved to a COVID unit in the hospital and eventualy had Pacemaker inplanted Medtronic dual chamber. The&n...

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ICD

I am new to this site. I have had 3 major heart surgeries since 1994.The last time was 12/18 when I han my mtal aortic vaive replaced with procine , also my tricuspid and mitral valves. difficult recovery. have had a pacemaker since 1994 .and of course battery changes along the way. Now I feel pretty good. On Entresto. The EP wants to put in an ICD .My EF is 22. I am 77. My feelig is say no.I hear depression is common after. Have to make a decision soon. I would like some input  thanks i...

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Skip or Double Beats

Hello I've had my pacemaker one year now, and I get sharp skip beats.....is this normal?

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Thankful for this group

I am so thankful I found this group. Learning so much & it helps to know that there are others who are walking this path of a new normal. I am 59 was active & healthy until 2020.

I got my Boston Scientific CRT-D which I have named "Josie" (my grandmothers name she lived to be 91) on August 3, 2020. Never had any heart issues until March of this year.  After 2 negative COVID tests & 1 negative antibodies test, 4 months with a life vest, 4 mo...

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Day 3

What a year, 2020.  Day 3 with my new pacemaker.  Bradycardia.  Bundle blockage.  Still not sure what that means.  I have 2 leads.  I'm feelling pretty good.  I felt a little light headed and dizzy yesterday but today I'm feeling pretty good so far.

I'm glad I found this forum because I suspect its going to be a good resource for information about my new normal.  Sounds like there is a lot to know about this device and my health.

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bra

What kind of bra is recommended for dual pacemaker for a small frame person?

 

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New to this

I had three episodes, over three months, of what my cardiologist labeled, "heart pauses", I blacked out. With the third episode, I decided to go to the ER. As I was already wearing a heart monitor my cardiologist officer was alerted. They called just after I arrived at the ER. They said I had a pause of 8 seconds. To me, that is a long time in heart time. My cardiologist met me in the ER and said "We need to do a PM" I said "When", he said "Now" I went...

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Hyperbolic oxygen therapy.

I had a biotronic P.M. implanted about four years ago and have had no issues. Recently had some other medical issues where I need hyperbolic oxygen therapy. To my surprise Biotronic does not recommend this treatement with their devices. Was wondering if anyone in the club has run into this issue and what they did about it. I am considering changing the device to a company where this treatement is acceptable. Any information would be helpfu.

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Contemplating AV Node Ablation and Pacemaker

Hi everyone.  I'm new to the group.  I'm 78 and active, but have had 3 unsuccessful ablations and am just sick of feeling my heart do it's continual acrobatics.  My little circus is a lifetime of Afib, extra beats and tackycardia, and also brady and longer qt intervals at other times with HR in the 50s.  It all seems to be diet related, because I have so many food and chem intolerances that set it off.   I also feel like I'd go down quickly w...

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RE Low HR

Hi I'm 54 and have had a dual chamber Meditronic PPM in place since Dec 2018 which was inserted for 2:1 heart block. The same week I had an Occlutech occluder device inserted via my groin to block a 3cm hole between my two upper heart chambers. I had some residual right sided heart failure and my cardiologist started me on a tiny dose of Bisoprolol 1.25mg.

In September 2019 I found out I had an inheritable form of high cholesterol (Familial Hypercholesterola...

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Rate Response

3 months into my St Jude dual lead PM.  Bradycardia with total heart block. I had some problems that seemed to be too sensitive RR.  The tech changed my settings to less sensitive today.  He said if that didn’;t work better for me he would just turn it off.  My question is what difference will I notice if the RR is turned completely off...big deal or no big deal?  Input appreciated!

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Rate response settings

After no settings changes after 90 day check up on my dual lead St Jude PM, I had a video appointment with my Cardiologist the next week.  He decided to tell the tech to raise my HR from 60 top 70 and make rate response more sensitive.  It seems my legs have more strength and I’m less fatigued.  But, one of the changes or the other has me wondering.  I was just riding in my golf cart not playing just watching...I followed my buddies foursome about 4 holes and it was...

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Micra pacemaker

Hello!

i had my micra pacemaker fitted nearly 6 weeks ago,at 44 yrs ol. I know it is a fairly new type of pacemaker.

just wondering who else has one & for how long,your experiences etc.

be good to meet fellow patients like myself!

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new to pacemaker

Good morning, all.  

Less than a week has gone by from diagnosis to implanting of my pacemaker two days ago.  I'm a 75-year-old woman in (otherwise) good physical condition, an avid walker and hiker.  Now I'm trying to process what's just happened to me and what it all means for my future activities and life style.  I'd appreciate any advice anyone has to share on adapting to life with a pacemaker, what to watch for, how to deal with the emo...

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Upgrading to CRT-P

I'm new to the forum but have had an implant at 11, and I am now 36. Next week I am getting a whole new device after years of a low EF (45-50) due to 100% pacing from a dual chamber. I am curious if others have had this experience? I was told I it would be good at my age to get the CRT-P to improve my EF. Also,  was told if my EF isn't improved it shouldn't worsen because of the new lead. I'm pretty confident this operation will go smooth but do the same risks and complic...

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home monitor

I HAVE A BIOTRONIK HOME MONITOR, A CARDIOMESSENGER SMART 4G, RECENTLY I HAVE GOTTEN WHAT APPEARS TO BE AN OPEN BOOK SYMBOL. CAN ANYONE TELL ME WHAT THIS MEANS.  ALSO WHEN I SHUT POWER OFF AND TURN BACK ON THE OK SYMBOL BLINKS AND NORMALLY OK SYMBOL DID NOT BLINK.     

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Seatbelt protector UK

Hi All,

New PM last week.

I'm trying to contact tghe soft touch peopl - are they open at the moment?

I'm allowed to drive now, but I'm more often a passenger in my husbands car.  The seat belt sits bang on top of the device.  If we're in mine the seat belt misses it, but a sports car is not the best for shopping!

Is there a UK supplier?

Many thanks

 

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Cough

Hi. My husband had his pacemaker fitted nearly 2 years ago. He has had a cough since November. Chest X-ray in February showed clear. Covid meant it just about impossible to be seen. A gp surgery nurse phoned him after I'd contacted them saying he couldn't eat or sleep, he's so worn out. She, disappointingly, prescribed lansoprasole to try and stop the acid in his mouth through coughing so much. Mostly he's bringing up clear frothy phlegm. 
lately, I've...

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High heart rate

I had a azure XT DR MRI surescan dual chamber placed about six weeks ago. At first I thought the pony races i was going on after walking was my new normal. The car rides and the bumps trigger the heart to beat over 118. I can't catch my breath. I have had one check and set at 60-130. I have tried to find anything to see if this is normal. I keep seeing people talking about tweeting the pacemaker. One check and don't see for a year. I can't do this anymore. I feel my heart is going...

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You know you're wired when...

You have an excuse for gaining an extra ounce or two.

Member Quotes

I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.