Most Recent Messages in General Posting

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Gemita

Hello 👋🏻 Gemita

just read  FAQ you took time to write ✍🏼 ....wow,  I not only love it ❤️   But also like that all basic concerning information we all have is in one place !!

 Thank you 🙏🏻 

I will reread it ALL again ❤️ ....few times 🥰 

all the best

Michelle

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Can a Pacemaker Malfunction?

Hi everyone, I have done some work(!)

I have prepared a long document on Can a Pacemaker Malfunction, which I have placed in our FAQs if you go to Learn, then FAQs, then press the down or up arrow at Club Information, then scroll down to The Pacemaker/Defibrillator, then press Choose Category, where you will find the document in three parts.  I have provided a List of Contents for Pa...

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pace trigger

Had pacemaker put in in April of 2023 so I am a newbie so to speak.

I have an unusual expierience that I have mentioned to my Cardiologist as well as my PM technician with no real clear answer. I am scheduled to have a yearly pacemaker check on the device so maybe this situation will be resolved   At exactly the same time every night my pacemaker causes my heart rate to increase not drasticly, but it goes from 62 beats to about 78 for about a minute or less duration, It s...

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Advice and Wisdom for Newbie - CRT-P 101

Now for CRT-P 101 boot camp basics .....  

What advice would you share to help help the hospital / returning home process go smoothly?

1) What should I make sure I have available immediately after placement?  Seatbelt pad? Bra strap pad?  Front button down shirts?  Front closure bras?  I live about 40 miles from the "big city" where the docs and hospital and retails stores are located, so it will not easily convenient to run back and forth f...

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New Pacemaker

Just had a St Jude/Abbott Labs PM-2272 installed 3 weeks ago.

Since installation, I have been getting intermittent shock feelings in the area when the PM was installed.

They feel like a TENS pad type of shock.

Have Dr appt Feb 27

Any comments?

Thanks

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why do i continue to check this site

  Want to see if someone asks a question that i might know the answer.  I am not technical and do not take any prescribed medications, only practical knowledge.

new to pace

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Pacemaker self-test and voltage

Hello everyone! 

I have a question about the self-test voltage vs. manually programmed voltage. 

I have an Astra Sure Scan Medtronic pacemaker (Model X2DR01) to manage my LongQT (Type 2). I'm paced at 80 bpm all the time. I've had this particular pacemaker for 5 years (but have had a pacemaker for nearly 25 years). For the first 4 years of this pacemaker I couldn't feel the self-test and only in the past year started feeling it. This seems weird to...

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CRT Placement

Honestly not sure which group to post in so I'll start here.  I'm about to get my first CRT pacemaker sometime soon - waiting to hear about scheduling.  My concerns are about placement.  I do not want to "see" the pacemaker after it's been implanted. This is very important to me on both a mental and physical (esthetic) side.  I'm also a very active lady who likes to backpack / hike, wear strapless tops, and participates in sports like Pilates...

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Spirit World

I had a strange experience during what I assume was REM sleep recently and received what I can only describe as a 'visit' from a deceased relative. 

I don't (or didn't) believe in spirits and this is totally new to me.  It wasn't a relative I was super close to either. 

My heart was playing up and missing beats and as I walked up some steps (in a dream) and entered complete darkness, I thought my time was up! Then a luminescent and very real imag...

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Pacemaker Tapping - Left Side Sleeping

Hello, I've been reading older forum posts on this, it's a weird one and seems to be a few different takes on cause / resolution.

Anyway, it's now just over two weeks since I received my PM and life has changed for the better, I feel like I'm thirty again and not in my mid 40's.

The only thing I am experiencing, not overly concerning just odd, is a tapping in my PM if I lay either on my left side or front. It's not painful, but feels like a rhythmic finger...

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Patient app

Does anyone use the "Patient App"?  I tried putting it on my iphone through Biotronik, but it always says the server is having problems.  I would like to use it if it could help me.  I'm new to all this pacemaker that I had put in at the end of December.  Santa said I was naughty, so he gave me surgery for 2023.  Actually, I'm very thankful for this modern technology.  Does the Patient app only work on Android devices?  Thank you for your h...

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Interesting interview

Saw these two items on the news today about a footballer's experience of heart failure on the pitch.

https://www.bbc.co.uk/sport/av/football/68346705

https://www.bbc.co.uk/sport/av/football/68346337

I didn't catch if he was still playing though.

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not receiving email notifications

Now not recieving email notification's when someone posts an answer to my query.  Have to keep checking this site to see if any adds to my post.

Also only spell check in the subject line not in the message.

new to pace

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New role health questionnaire

Hi.  I have an Abbott Gallant ICD for Cardiac Sarcoid.  Health wise things are stable. Work has not been easy though with the pandemic and generally being in a competitive business. 

I have just been offered a excellent opportunity with a new role that I am super excited about. They have though sent me a detailed health questionnaire asking a range of questions which include - Have I ever had a heart problem and have you ever been on medication. I hate sharing information...

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Pacemaker pulsing me when on left side

I had my pacer installed in 2009. I only use it during sleep when heart pauses. Last year my use went down to only 4 episodes. I am currently on vacation and in the last month I've noticed when in bed if I lay on my left side it triggers the pulsing 6 times each time until I shift off that side.  Is this normal? I've never had this issue before.

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magnetic scanners

I pace 100% of the time.  Is it safe for me to walk through a magnetic scanner at a sports event?  Ii've noticed many PVCs since I did it the first time and since (about a month).

Will my at home monitor pick this up?

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Knowledge is key

I like to keep myself knowledgeable about things when it comes to health... and I don't know anyone personally who has had heart attack symptoms.. or a heart attack at all. Thank goodness... 

so I read up on this.. what are some symptoms if any pacemaker recipients have experienced? 

 

 

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from Jodi

I signed up a few  days ago and yesterday and today I was unable to login in. I emailed the help center email.  in the interim I  started a new log in so I can still interact with the club.

I am scheduled for thurs or fri for a PM and am nervous.  I am a woman with large soft breasts (not overweight) and now concerned about the leads healing with the breast movements.

I am 65yo

I think I will sleep on my couch and not a bed I am nervous to have too much m...

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Bpm going under 60 update

Rather than tack onto my other thread, I am starting a new one. This regards my heart bpm going to 58, 57 and 55 briefly in the ER. My cardiac nurse consulted with my cardiologist and called me back this morning.
 

She said, "there's no need to be concerned about your heart rate going below 60 when you were in the ER as long as it's not sustained that's normal for your pacer not to do anything. "

She said she rechecked my last pacemaker report and a...

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Confused and working a plan

I had a 30 day post op appointment wth my EP -  I wat to shout him out!  

I had a bypass in 2007 and have seen many heart doctors and general practicioners.

My current one was said to be very well liked but tends to run behind.

My Pacemaker imp,ant was scheduked for 2:00 and happened at 5:30.

At this follow appointment the nurse came in thw waiting romm to announe "the doc doctor is running 3 hours behind"

I galnced around the room (hoping som...

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You know you're wired when...

A thirty-day guarantee is not good enough.

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My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.