Most Recent Messages in General Posting

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Small shocks

Last night I was awakened by what felt like small shocks or pin pricks in the area of my heart. I am 100% paced because of a complete heart block, have had my pacemaker for 3 years and never had this happen. It worried me, lasted about 15 minutes, with some shortness of breath, but I didn't get out of bed (was too worried to get up)
Has this happened to anyone else? Should I mention it to my EP or cardiologist? I am fine today.

Megthered

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cortizone and PM

I have had 3 spinal injections with cortizone where they used an xray to guide the needle in. No problem with PM. I did have to stop warfarin for 5 days prior to the procedure.

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Honeymoon with recent PM implant

I'm 22 years old and I just got a pacemaker implanted a week ago. I'm getting married in 3 weeks and we're planning on flying to Colorado for our honeymoon. What do you think about flying so soon after having a pacemaker put in? I've never flown, so I'm a little nervous about that, plus flying across the country with a new pacemaker (I live in VA).

Also, my family is traveling to Disney World in June. I'm hesitant about riding the rides with shoulder harnesses because of the contact i...

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That weird "whew" feeling with NCS

I was going to post to an earlier topic but have had computer problems, so I thought I would start my own topic. I also get strange feelings due to NCS like ela-girl described. When it happens to me it occurs about 5-6 times in one day and then not again for a month or so. Something just happens to your brain for a short moment and all these weird thoughts rush in at once. A while ago I was having one of these days. I was at work in the tea room and while I was walking with a full cup of hot tea...

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Questions for first checkup

I am going for my six week exam. Is there any questions I should be sure to ask? I know I have my list but I don't want to forget anything. I still occationally have pressure in my chest which is only relieved by taking advil for at least 24 hours. I though this would be gone by now. Does anyone else have this?

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Here I go!

Hello there! I'm 32 years old and I'm so glad to know I'm not the youngest person with a pacemaker (or will rather..lol) I'll be having my pacemaker put in on the 9th. Switching out a monitor that is alrady been hanging out for a few weeks. I guess what I wanted to ask is: How long should I take off from work. I am a retail store manager. I was fine after about 3 days when they put my monitor in. Will the pm be that much different really? Also the whole lifting my arm above my head thing. Is tha...

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Neurocardiogenic syncope

I have been diagnosed with Neurocardiogenic syncope (NCS) and a I had a PM implanted 1-18-07 to prevent me from blacking out. My condition is rate drop, beta blockers are not an option because I’m an asthmatic. On an average I have 15 to 20 rate drop episodes daily. The parameters of my setup is a rate drop of 40 bpm in 15 seconds or less with the pacemaker intervention then raising my heart rate to 90 bpm for two minutes. During the day my low limit rate is 60 bpm & at night when in sleep m...

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CHF

I have an ejection fraction of 20%. I am on meds to try and increase. I am a canidate for a bi--ventricular pacer after 3 months of meds if they fail. Does anyone know how I can get some info on the best make and model.The companys just issue some general information. I probably will get only one shot at this and would like to make the best decision possible. i am wearing a life vest at present and trying to live as normal as possible

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Just to Say: Hi Again

Hello Pacers.

It seems ages since I logged in and then I find the site has been updated. Congratulations to Blake for the changes. I am getting used to it all - have been off air due to computer breakdown.

Well, I had a fantastic time on holiday with Rewired. Kay and I get on so well. She is a wonderfullady and a wonderful friend. So supportive. ( I have been going through a really bad bout of depression) So, if I need a laugh to cheer me up I ring her. MY photos a...

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Coincidence

Hi I notice a pacer Billie Hyde. Well my name is Billie too.

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TO THE LADIES

I AM 49, WITH A PM PLACED IN MY LEFT CHEST. I AM INTERESTED IN BREAST AUGMENTATION AND WONDER IF ANY OF YOU HAVE SAFELY HAD THIS DONE OR WHAT KNOWLEDGE YOU MAY HAVE. I AM JUST BEGINNNING TO EXPLORE THE POSSIBILITY AND HAVE NOT YET SPOKE TO MY CARDIO PEOPLE YET. THANKS, LESLIE

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Anyone else with Lupus too!

I was just wonder if there is anyone else out there with a PM and Lupus? I'm 44 and have had lupus for 15 years. My doctor does not seem to think my heart problem is from lupus but I was curious if it might be.

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Support for women with pacemakers

Just a reminder that our group WIRED4LIFE is dedicated to providing support and understand to women with pacemakers. Feel free to drop a note & let's commiserate about the 'joys and fumbles' of being a wired woman! ~Dawnhuberty@wired4life.net, on the web: www.wired4life.net

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A Birthday Announcement for a Special Pacer

Happy 8 to the 2nd power + 4 Birthday!

You should tell people to write that on your cake. That way, they are obligated to buy the biggest one they have.

I hope you have a great birthday BobR! (if you say that fast, it sounds like “barber”)

BobR: April 28, 1939

Take care,
~valerie

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Coeliac disease

Coeliac disease is not an allergy. It's an auto-immune disease, which means that the body produces antibodies that attack its own tissues. For people with coeliac disease this attack is triggered by gluten, a protein found in wheat, rye and barley. Some people with coeliac disease also react to oats.(www.coeliac.org.uk). I was first diagnosed in 1956 and put on a gluten free diet and have been on one ever since apart from a spell of 12 years from mid teenage years. I was tested for a suspected h...

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Coeliac Disease

Does anyone have or no anyone with a PM who has Coeliac Disease?

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Time to party, pacer!

<~*<~*~*>~>

Chris (third1): April 26, 1986

So, if you cant decide what to do on your b-day, here are some suggestions:
1. You can fly a kite….oh, but not if its raining, lol. Well, no, I guess you could fly one, but why chance it, I say.
2. You can make a request to NASA that you would like to attend the next flight into outer space. It only costs $20 million; great bargain yes? And if you don’t like your age, you can ask the astronaut to fl...

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How high will the pacemaker go?

I was just wonder if anyone know how high a pacemaker can be set for? My doctor seemed to thing about 140 but he really didn't seem all too confident with that answer. I have an exercised indused heart block so when I am exercising my heart rate will be at 150 or even higher and then my beats will drop all the way down to 60 and stay there for a few minutes before trying to catch back up. It is even happening at around 100 bpm now. I have had my PM for 5 weeks and I 've just started back work...

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Discomfort when sleeping AND weight lifting question

I had my pacemaker put in on March 23 and I still have a lot of discomfort. It has been 5 weeks and I am still having difficulty sleeping because when I roll on my sides the PM digs into my collar bone. Does anyone else have this problem? Its driving me crazy! I also have pain at the site, is that still normarl?
Also, is anyone else out there a weight lifter? I teach a class called Group Power at my gym and I am suppose to start teaching again next week. I am a little concerned about l...

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rate drop response

My pacer is a Medtronic EnPulse DR it is set for me at 70 bpm. The rate response is set so that if my heart rate drops suddenly within a 1 or 2 minute span (not sure which) by 25 points then the pacer kicks my heart rate up to 100bpm for 2 minutes. Then slowly it goes back to the setting of 70 bpm. This gets the blood pressure back up quickly and keeps a person from getting dizzy or passing or even from blacking out. This has worked great for VVS. Now those pesky little split second blackouts wh...

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You know you're wired when...

Like the Energizer Bunny, you keep going.

Member Quotes

Do feel free to contact the manufacturer of your device. I have found them to be quite helpful when I have had questions and concerns.