Most Recent Messages in General Posting

Post Message!

Self Advocacy

I know this is preaching to the chior as folks on this website certainky are engaged in their care. It worries me at times to think about peole being served by the medical industry who cannot advocate or have no one to advocate for them.

To navigate through the process you have to educate, ask questions, and be engaged.  

here is a recent story ;

Early last Fall i pulled a groin muscle playing tennis. There was brusing from the the top of my thigh to below my knee..soli...

Read More...

Due for annual echo & cardio visit

Next week I'm scheduled for my annual echo and appt with my  cardiologist. It was almost a year ago that the echo showed a significant decrease in my EF (which was done 2 weeks after a flu virus) which led to my Claria MRI Quad CRTD and AV Node ablation at the beginning of September.  It took me almost to Christmas to feel normal again (dealing with PVCs, fatigue etc). Normal being what I was at prior to September.  I was having a big case of "Buyer's Remorse&...

Read More...

Virtual Reality headset

I have an MRI compatible pacemaker and would like know if I can use a virtual reality headset to play games?

The advice given with the instructions advises against using the equipment when fitted with a pacemaker but I believe this is the same advice given about magnets etc and I have been in an MRI machine with my implant!.

Does anyone have any experience of this?

Read More...

MEMS

Bosch are well known for power tools and household appliances.

It might not be widely known that they also develop sensors used in industry.

They recently announced a new MEMS device.

MEMS is Micro ElectroMechanical Systems.

These are extremely small sensors for pressure and movement and the latest is an accelerometer.

It is unbelievably small and would easily sit on the head of a fine dressmaking pin.

What is really impressive is the microscopic manufactur...

Read More...

again not getting email notification about someone posting to query

Have to go on site to see if anyone has posted an answer to my question.  Since the takeover on this site i find we are going backward.  Spell check has disappeared and now  emails about those posting to our queries.

new to pace

Read More...

pacemaker has been dormant for a while...choice to remove?

I'm 70.  10 years ago my heart just decided to stop for several seconds about 4 times over a 7 hour period.  I received a basic pacemaker to get me going when my heart slowed.  I've had every test in the book with no reason ever found for this happening.  Coincidentally, at the time I was going through a recovery from several months of thyroid fluctuation (all natural, I never took drugs) that my endocrinologist theorized may have contributed to my heart having tro...

Read More...

Painful to the touch at implantation site

Good morning!  My son is 5 weeks post op, and 11 years old. His pacemaker is placed into the muscle tissue on his chest, so I get that it takes time to recover, but is it normal for the implantation site to still be sore to the touch after 5 weeks?  The skin is healed nicely, but if he just wipes his hand over the PM to wash the skin over the top it still feels tender. I'll check in with his doctor too but just like to get a sense of how other's have recovered too.

&nb...

Read More...

Tattoo

Does anyone have experience with a tattoo around the pacemaker area ? Can it be done ?

Read More...

Channel 5TV

Might be of interest to UK members.

Channel 5 last night (Monday) new series A&E Crash site emergency.

Patient had suffered cardiac arrest while driving. Very poorly and touch and go.

When stable, had angiogram and fitted with pacemaker. Quite good coverage of the whole procedure from opening the device package to pushing and shoving to get it in.

Despite worries of possible brain damage from loss of circulation, made good recovery.

Read More...

Pacemaker Physical Limitations

Hi, I recently had a biventricular pacemaker implant (3 weeks ago). 

I volunteer at a local food pantry driving a box truck to pick up food donations from the local Walmarts and Sams Club. This requires loading and unloading pallets of food with a manual pallet jack. Some of these pallets weigh over 500 pounds loaded.

I obviously haven't done this during my recovery from the surgery and am wondering if anyone else has had this experience of pushing and pulling heavy loads...

Read More...

Pacemaker

While checking my blood pressure .machine says irregular heartbeat it that normal as I've got pacemaker?

Read More...

Solar Flares and Pacemakers

Question of the year for me... since solar flares have become a common topic lately.. I am beginning to wonder if anyone has information or wondered if solar flares can affect pacemakers? 
 

If solar flares can affect pacemakers or disrupt it... isn't this a conversation we should all be having with our doctors just incase? 

Read More...

Fear

I live with a sense of fear ever since a bypass 17! Years ago .

There isn't much time o don't think about and when I get little twinges I notice and wonder 

 

can I think into being what I fear most ?

 

does anyone else live with such fear ? How do you manage it ? 

Read More...

Here I am again ..

Well here I am again .... In 2007 bad a 5x bypass .44 years old .
2019 my AV node stopped working so I had a pacemaker installed .
This year i learned my EF rate was 30 - heart failure in April .

Now its 2024 and I just had a new PM installed with new wires - one is a "shocker " then other pacing the LV 

scares me to think where or how this all ends !

 

what brought me in this time is chest pressure that never went away - not pain but...

Read More...

Is it the pacemaker?

While I was on, I figured I'd post my Bardy monitor results.. even though it leaves me with more questions than answers. In the summary it says "Although pacemaker indication states yes, there were no instances of pacemaker activity." The next line states "Symptom episodes of Ectopic Atrial Rhythm and AT may actually be atrial pacing." Maybe I'm not understanding correctly, but these seem like completely contradictory statements..  He did say in office th...

Read More...

Curious about young PM recipients.

I'm 35 and on week 6 of having a pacemaker and I'm just curious about how many other younger folks have a pacemaker or older folks that got theirs when they were my age. I'm also curious why you needed one so early in life, my circumstances are out of the norm since my heart is healthy but my nervous system is out of wack. I just ponder if my situation is as uncommon as I am led to believe. My doctor said besides a few babies who needed a pacemaker at infancy I'm his youngest...

Read More...

Leadless Pacemaker Opinions

Hey everyone,

If we haven't met I'm Abi and I am hoping to get some opinions about leadless pacemakers as I am likely going to be getting on on the 19th.

I need to get a new pacemaker and my cardiologist is suggesting I get a leadless one (the most recent medtronic). I was hoping to get some opinions from anyone who has one on how they like them. My cardiologist walked me through all the benefits and risks so I am really just looking for patient experience I have...

Read More...

Lump in the throat?

I'm on week 7 of having my pacemaker and recovery is going alright for the most part. The past 2 days though, my chest has been tight and I have a sensation I can only describe as a lump in my throat. It's right under my Adams Apple on the same horizontal as my collar bone. I felt fine for the past 3 weeks and this is new. I figure it might be normal so I thought asking around here would be a good idea before freaking out.

I have never had an ablation, I have no signs of any inf...

Read More...

New to me brands pacemakers CRT, but which one.?

My hospital cancel contract Biotronik pacemakers, I had two of these, all good.

My pacemaker technician say next one is choice of Boston Scientific, Abbott or Medtronik. I have now CRT pacemaker Eluna Biotronik since 2014.

Any idea which one to choose for my 3rd pacemaker replacement?

 

Read More...

Covid19

Has anyone with a pacemaker experienced palpatations after having Covid19

Read More...

You know you're wired when...

You have a T-shirt that reads “Wired4Sound”.

Member Quotes

I have an ICD which is both a pacer/defib. I have no problems with mine and it has saved my life.