Most Recent Messages in General Posting

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Pacemaker movement question

I had my ICD implanted Nov 2020, and am adapting to it quite well. However, when I am lying down, it seems to pivot and ends up right against my collar bone. When I am upright, it sits about 2 1/2" below my collar bone, so it feels like it's not scarred in correctly. I am heavy-chested (G cup), and quite often feel a pull at the top of the PM. Is this something I should be concerned about? Would a breast reduction (with my cardiologist's blessing) help?

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Sinus node nicked

I see a lot of people have had their sinus node nicked during an ablation and now need a Pacemaker. Was that the surgeons mistake or is it just something that happens?

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Fell, should I have my icd checked?

Hello everyone,

I have been doing great, however, today while riding a bike I fell - my tires skidded. My left-side chest, shoulder, and arm hit the ground - luckily the ground was soft. Sounds dramatic, but luckily the only thing that broke was my phone holder - my phone and myself are completely fine. However, I am wondering, because I did hit my left side of the chest, the side that has an icd, should I have my icd checked out?  It's Friday, do you think I can just...

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Miserable

I switched cardiologist because he would only spend 2-3 minutes with me and he cancelled everybodys appointment that day and I made mine a month out. My new cardiologist spent at least 20 minutes with me and he was shocked that I was given an icd without an angiogram prior to surgery, he was not happy when no stress test was given. He stated he probably doesn't think I needed one however he made an appointment for me to have a stress test by the end of this month. Anyways my icd been in m...

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For pacemaker innovation geeks only

New, March 6, 2021. "Reconstitution of native intrinsic conduction in patients with chronic conduction block with His bundle pacing" published in the prestegious HeartRhythm Journal:

<https://www.heartrhythmcasereports.com/article/S2214-0271(21)00051-8/fulltext>

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Melatonin

Does anyone take melotonin to help with sleep while having a pacemaker and taking blood pressure meds....makes my blood pressure low like 87/60 normally it’s 117/75 wondering if this happens to any one else

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His Bundle pacing what is worth?

So you made need to scroll back to my post titled "two devices" to get caught up.  Brief update, my insurance covers only emergency room visits out of state, no consults, appointments anything.  The his bundle pacing sounds like a real long shot as to whether or not it will even help.  My EP who did his fellowship under the top guy at Mayo says he will do the procedure but he has 2 fails out of 3 attempts at the procedure, his partner who has done 11-12 (not sure fail...

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Remote Device check

Does anyone else feel terrible after a remote device check? I had my first remote one this morning and I have felt so exhausted and weak since they did it. My pulse is at 66, Oxygen at 96% and BP is 117/79.

My pulse will go up to 105 if I walk around, but as soon as I sit, it drops to the 60's. Feels like the top left front quadrant of my head is in a fog. Maybe 60 is too low of a pulse set?

I'm 67 and normally very active. Yesterday, Tuesday, I felt great and we hike...

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pacemaker and desktop computer tower

  I have a pacemaker (Aug 2019). 

I am having  a problem with the fan not cooling in my computer tower.  The repair shop said to bring it in to them.  In speaking with a friend yesterday.  She mentioned that she thought the tower might have magnets, in the tower.  Of course that means i should not carry it in.  Is that true?

thanks for your help.

new to pace..

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Two devices?

Has anyone made the switch from one type of device to another and been told they wanted to leave the first device in as a backup?  This seems odd to me, and perhaps a coverup of them not wanting to take the time to extract the first device;  I could be totally wrong and this might be totally logical, maybe y'all can help me out with this one?

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pm device

does anyone else has a monitor you keep at your bedside. and they aytomatic read it no sending report

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Sick sinus syndrome

Hello everyone I posted before about how my heart is not fully using my pacemaker and that it only uses 2% I've had it for 5 months now, a week ago my doctor told me that I have sick sinus syndrome I guess my diagnosis with AV block wasn't accurate this is disappointing going through all of that for nothing... any ideas if my pacemaker will help me in this syndrome?

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non pacemaker person

I am not going to help those anymore who say they  did not want a pacemaker along with their phamton problem's.  They have wasted my time and yours.

  This website does need some type of upgrade so we do not have to be subjected to this abuse.  I know spammers can get around this, but we should make it harder for them to do so.  Such as you must  confirm to the email when it is sent to us, when that is back up.  Before you can post.  Or y...

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Co-vid vaccine

Has anyone had a reaction to the second Co-vid vaccine? I had a PM adjustment on Friday, turning on my Rate Respnse and lowering my pulse to 50 at night and 60 during the day. Saturday I had my second Co-vid vaccine. Since both, I have had a light headed feeling. My BP is 103/73 and my pulse is 80 sitting here at the computer. I did run a fever of 101 over the weekend and I know that was due to the vaccine. I tried a 2 mile walk yesterday and at the 1 mile point my pulse was 60 and...

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Do I need to see an Electrophysiologist?

My resting heart rate was in the low 50's for over 15 years.  But, I was always told that it was ok for it to be low, so long as the heart rate goes up appropriately during the day. (I had several occasions of wearing holster monitors, etc... over the years). 
 

My cardiologist implanted a loop recorder, this past September, and based on it's readings, said that my HR was not going up like it should during the day. So, less than two months afte...

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Joining

I joined and was told I needed to reply to an email to be a member, but I never got that email. It also says that when someone replies to my post, I will get an email alerting me and I never have gotten anything. Am I a member?

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CRT vs His Bundle

Anyone have some real life expierience with this?  Also, if someone already has found some papers on this topic you could save me some research time ;)

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Bi-V and heart function

Its been 6 days I had my ICD with Bi-V pacing and I went on couple of walks around my house (roughly 2.5 miles in 40 mins). There was a slight incline along the path and  my apple watch used to show  around 120 BPM once I get to the top of it.Now it shows just 100. I know its not a lot of data and I kept the same speed.It seems like with Bi-V my heart is able to accomplish more output at less BPM. Anyone experiece something similar? 

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T-shirt ideas

So the second year I had my pacemaker I had a friend with a print shop make me a bunch of tank tops for the gym that said "battery operated" on them.  They became some of my favorite wardrobe staples and now are disintegrating.  I am planning on making some new ones but thought I should come up with some new ideas.  I can't think of a better group to ask than all of you, I am sure you all have some great funny ideas for me!

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His bundle pacing?

The EP wants to try his bundle pacing one me.  Anyone with HFrEF make the switch?  If so did you get any significant improvements in cardiac function? A more difficult question would be did you get a mortality benefit from it or just an improvement in symptoms, or both?

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You know you're wired when...

You play MP3 files on your pacer.

Member Quotes

My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.