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Still progressing well with my Pacemaker and heart block

My pacemaker was fitted after discovering I had a 2:1 AV block. That was in November 2020.

I have had a few changes to the pacemaker settings since then but now on a setting of VVI40 (which only kicks in if my ventricles drop below a rate of 40bpm.

I am now pacing in the ventricles 1.3% of the time.

A very small amount. 

I am able to exercise and go about my daily business without worrying about overusing the pacemaker but at the same time not worrying if i w...

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After the pacemaker has been installed

Hi all. Just wondering if anyone still felt like they may pass out but don't after pacemaker has been installed.mine was put in 3 weeks ago and twice I have felt the symptoms.last one was today. Feel gutted as I was going back to work next week

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update to my tests for ferritin and C-reactive Protein cardiac

The doctor recommends green veggies and lean protein.  which means i have to leave my veggie lifestyle after 30+ years.  Thank goodness hopefully will be for only 3 months.

I got back the results from the Food Sensivity test, which showed me why i reacted to some of the foods that have been eating.

She did say i need to  take EPH/DHA a fish oil or Algae Oil.  Said i read online that fish oil can cause A-Fib.  Since i do not need that, will try the Alg...

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Treatment

Hi Everyone,

 

I'm a 25 year old male that got a pacemaker implanted when I was 2 years of age. I am on the search for any treatments to resolve the need for a pacemaker. If anyone knows of anything please feel free to send it my way. 

 

What I have discovered so far is magnesium apparently is great for healing/ repairing damaged tissue around the heart but I am only early in my search and do not know of any proven studies.  

 

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Remote monitoring

Will i get useful information from remote monitoring, implant was in December 

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PVCs

I've been having tons of what I think are PVCs lately.  I don't feel the "hidden" pulse though, unless it's right after the true pulse. If that's the case, I don't see how the next pulse is being inhibited.  I've been  having them while cooling down after walking but recently at random times, mostly at rest. 

They don't show on interrogation reports but only strings of four or more will record.  My device nurse told m...

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Free Health Care in Canada. (NOT)

First off to quote a famous saying. "There is no such thing as a free lunch"

sure I've spent 15 days in the hospital 5 days each, 3 different times, had a lot tests done, had a lot of doctors fawn over me.  Walked out the front door and not had to fill out 1 form or reach for my wallet. 
BUT

I have pay about 30% combined Federal and Provincial income taxes. 
I also pay 13% sales tax on everything I buy at the store.

<...

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Covid Vaccines

I've not been on this forum for very long at all, but so far I've seen 3 posts inferring that the Covid vaccine may have caused some kind of cardiac issue. 

I'm interested because there has been a bit of hoo-ha in Parliament over here because an MP (Member of Parliament) raised previously undisclosed research which seemed to infer known cardiac reactions to Covid vaccines which he felt should have been disclosed. He felt that the...

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Newly Implanted

Hello all! I'm glad I found this site. I've been all over the place with my new ICD. I was implanted a week ago and a week after I had V-tach and the doctors could not figure out why and had to transfer me to another hospital with an mri team that could do one on my heart. I was told before my mri that I had a right branch block and after it they diagnosed me with myocarditis and significant left ventricle damage. I begged to not get the device but the EP doctor said there was no othe...

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update to my high results to Ferritin and C-Reactive protein tests

Wrote to my doctor to ask what the high blood reaction meant.  She wrote back saying  "its a metabolic issue meaning the way the body is working".  Usually diet and how your body is dealing with the food."  I then wrote and asked  "so the foods i eat are causing this problem".  She then wrote and said "only is so far as how your body processes them".

She then wrote and said she usully recomends :green vegetables and lean p...

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Pacemaker decision

Hello everyone.

 

First of all, my apologies for not being good at English.

 

I shared a few posts before to give you information about my disease and to get information. 6 months ago, I learned by chance that I have a congenital heart block and it is now 3rd degree. All tests were done, including Mri. Some doctors said that one day I would have to wear a pacemaker, some said it would be helpful if I had it installed, and some said I could wait.&nbs...

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doctors leaving or reducing their hours

Continuing the discussion of what Lavender mentioned about her doctor leaving.   Had that happen with my GP who sold her practice to a large corpropration.  This corporation only took Medicare Advantage which meant i had to leave since only have regular Medicare. Because our local hospitals got there own hospitalist.  Meant she lost that money from her 5am rounds.  Unfortunitaly she got Covid19.  Decided to leave her practice intirely .

Cardiologist reduced...

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AV node ablation with pacemaker

Hi all, Just found this forum and it's great to read through some of your experiences with a pacemaker. 

I'm a 51 year old male.  I'm due my second RF ablation in February for persistant AF with an EF of 36%.  Been on Amiodorone for over 2 years which kept me in rhythym.  Unfortunately the Amiodorone has given me an overactive thyroid.  

My EP thinks due to extensive scarring above my atrium and right ventricle that the ablation will not h...

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Arm above your head

Hi ya. The doc said to not raise my arm above my head. Why ? And is it until the pacemaker site has healed or longer ?

Thanks for any information 

 

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Pacemaker dependent

I have been wondering has anyone been a pacemaker dependent for more than 45/50 years? 
 

Thank you and hope everyone is doing well 

 

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grandsons pacemaker

My grandson had a pacemaker installed about four months ago.  He is 6 years old.  We are planning on taking him to Disney World .  Any advice on precautions that we might need to take would be appreciated. 

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CRT-P

Hi I was fitted with a crt-p pacemaker as had complete heart blockage and was born with my heart the wrong way round. Just been looking up about CRP/T pacemaker and people say there for heart failure. It wasn't mentioned to me I had heart failure. An take no medication. Wondering if people know about crp/t packers. Thanks 

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How noticeable will my PM be

Hi everyone, 

Recently informed i will need a PM and i have done a lot of research but have a general question, how noticeable will my PM be. I am 38M and average build. I know there are several models but on average what can i expect. 


Thanks

 

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Biotronik Enitra 8 DR-T

I'm researching a couple of pacemakers and wondered if anyone knew anything about their pros and cons for a) rate response b) management of v.pacing c) mode switch options and any other algorithms which are effective / ineffective / useful : Biotronik Entera 8 DR-T & Medtronic Azure S DR

Many thanks in advance

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Chainsaws

Hi. Got a pacemaker less than a week ago and have heard that chainsaw and line trimmers are a no go.Please tell me that's not right. I teach chainsaw use in New Zealand.

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You know you're wired when...

Your pacemaker interferes with your electronic scale.

Member Quotes

I am just now 40 but have had these blackouts all my life. I am thrilled with the pacer and would do it all over again.